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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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seizure

  1. C

    Extremely ill after 3 months cancer treatment. Bedbound again.

    So I've had an ME diagnosis for at least 15 years. I became full blown chronically ill when I was only a teenager and I can't pinpoint anything that caused this, over the years I just got worse and worse. I ended up bedbound in my early 20's and spent most of my 20's resting, pacing, sleeping...
    • CallieAndToby
    • Thread
    • bedbound cancer cancer treatment declining immunosuppression immunosupressants insomnia interstitial cystitis myalgic encephalomyelitis seizure
    • Replies: 17
    • Forum: General ME/CFS Discussion
  2. F

    A symptom I didn't tell my doctor but should have: phantom smells

    I always figured "smelling things that aren't there" would be something a doctor would have maybe not heard of and not know what to do with, but turns out it's a thing. Also, it's neurological. https://www.nbcnews.com/health/health-news/phantom-smells-may-be-sign-trouble-n890271 It's usually...