• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    Factors Influencing the Prognosis of Patients with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Ghali et al, 2022)

    Abstract Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a long-term debilitating multisystem condition with poor prognosis. Studies that examined predictors of ME/CFS outcomes yielded contradictory results. We aimed to explore epidemiological and clinical prognostic factors of...
  2. Pyrrhus

    Autopsy findings: Summary of discussions

    I thought I would start a thread to summarize any and all autopsy findings from ME patients. Please feel free to share any relevant case reports, anecdotes, and studies. I'll start this thread with one of the earliest reports of autopsies in ME patients: Autopsies from the 1955 Royal Free...
  3. gbells

    ME Activity Level Over the Years Poll

    To answer this poll please find the selection that corresponds to how long you have ME and where your current highest sustainable activity level is and select it. Thank you.
  4. W

    Poll: Have you Experienced Temporary Remissions?

    I've experienced over half a dozen temporary remissions over the years. They've been abrupt switches back to apparently full health, followed by abrupt switches back to regular ME. They've also made me feel bouncy with energy (Tigger mode), although that may just have been in comparison to...
  5. JaimeS

    What is the course of your ME/CFS?

    Please read before responding. I'm wondering whether people who have ME/CFS are willing to check off what their 'pattern' of ME/CFS is like. For the sake of expediency, I've copied the types of multiple sclerosis. I'd love to also characterize early vs later on in terms of symptoms, but for...