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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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peripheral neuropathy

  1. Emmarose47

    Pain in hands and feet

    I always get pain in hands and feet before or at beginning of a flare ... It's like an intense nerve tingling / aching and crushing feeling .. Do others get this ? Do we know why it's hands and feet ?
  2. ChookityPop

    Could this be neuropathy?

    I have this thing that bothers me. Could it be PN or SFN? For example when I type a lot on my computer I get this crazy burning pain/sensation in my arms. All the way from my wrists to high up towards my shoulders. Its very painful and I have to stop typing. Anyone else? It also comes and...
  3. 2

    Link Between Sleep Apnea and Peripheral Neuropathy

    (Reposting in this section) Hello, My neurologist recently diagnosed me with severe Idiopathic Axonal Polyneuropathy after my rheumatologist and GP tested for every possible cause. Ever since becoming ill 33 years ago with ME/CFS (brought on by an acute case of Epstein Barr Virus) my legs...
  4. 2

    Link Between Sleep Apnea and Peripheral Neuropathy

    Hello, My neurologist recently diagnosed me with severe Idiopathic Axonal Polyneuropathy after my rheumatologist and GP had tested me for every possible cause. Ever since becoming ill 33 years ago with ME/CFS (brought on by an acute case of Epstein Barr Virus) my legs have "vibrated"...
  5. 2

    Have you been diagnosed with Idiopathic Polyneuropathy?

    Hello. I've had ME/CFS for 33 years and from the beginning I had vibrating sensations in my legs that were always more pronounced when overly tired. For the past 7-8 years my feet have became numb and have the odd sensation of feeling like I've got plastic wrapped tightly around them...
  6. TCP36

    How many of us have neuropathic pain/damage; both peripheral and autonomic?

    I was interested to find out what percentage of members experience nerve pain which can be shooting/burning/prickling/stabbing/freezing/trickling etc. I have peripheral and autonomic neuropathy affecting all limbs and torso, which has led to POTS and other problems. The neuropathy has effected...
  7. Nielk

    Peripheral Neuropathy

    Has anyone experienced peripheral neuropathy? Is it part of Chronic Fatigue Syndrome? I have been feeling numbness and tingling in hands, feet, lips and tongue for the past 2 months. I had a nerve conductivity test done on my legs and it showed nerve damage. The doctor was surprised that I...