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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Pyrrhus

    Overlap between ME and PANS? (conference abstract)

    Chronic Fatigue Symptoms in Children with Abrupt Early-onset OCD And/or PANS (Chan et al., 2020) https://acrabstracts.org/abstract/chronic-fatigue-symptoms-in-children-with-abrupt-early-onset-ocd-and-or-pans/ Abstract (emphasis added)
  2. A

    A Boy, His Brain, and a Decades-Long Medical Controversy

    A Boy, His Brain, and a Decades-Long Medical Controversy No one could deny that Timothy was sick. But when doctors can’t agree on the cause of an illness, what happens to the patients trapped in limbo...
  3. pibee

    Anyone else with PANS/PANDAS?

    In 2013 I first heard about Lyme, mold etc, before I was informed about ME, and what it seemed to me from start as very highly likely is that I had PANS from very early childhood, my brain never functioned completely in mental or cognitive ways and the flares were obviously related to immunity...
  4. C

    What Happened to the Girls in Le Roy

    What Happened to the Girls in Le Roy http://www.nytimes.com/2012/03/11/magazine/teenage-girls-twitching-le-roy.html?_r=1&pagewanted=all Wessely plays a prominent role in this article.