• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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me/cfs activism

  1. frozenborderline

    Long covid has forced a reckoning for one of medicines most neglected diseases

    https://www.theatlantic.com/health/archive/2022/09/mecfs-chronic-fatigue-syndrome-doctors-long-covid/671518/ An article by Ed Yong, about how long covid is forcing people to address the situation with me/cfs. I'm not sure he's right about that but it's worth a read and he is getting our...
  2. frozenborderline

    ME/CFS is a living death--why mortality isnt what matters in illness advocacy

    https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ https://openletteropenmedicinefoundation.com/me-cfs-is-a-living-death/ The title basically speaks for itself but the article is full of facts and figures about quality of life and how we can change our rhetorical...