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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  2. RYO

    NIH Intramural study update

    A newsletter was sent out today to study participants. I wish there was more data but I clipped study update section. “The Post-Infectious Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (PI-ME/CFS) study has been active since fall of 2016. Our team has decided to put together this...
    • RYO
    • Thread
    • https://forums.phoenixrising.me/attachments/image-jpg.14652/ nih
    • Replies: 34
    • Forum: Latest ME/CFS Research
  3. viggster

    NIH intramural research program update

    At the just-completed CDC Grand Rounds, Dr. Avindra Nath of NINDS spoke fairly quickly and he presented a lot of details. I didn't take good notes, so others should fill in. - NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment - Immune...
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