• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  2. RYO

    NIH Intramural study update

    A newsletter was sent out today to study participants. I wish there was more data but I clipped study update section. “The Post-Infectious Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (PI-ME/CFS) study has been active since fall of 2016. Our team has decided to put together this...
  3. viggster

    NIH intramural research program update

    At the just-completed CDC Grand Rounds, Dr. Avindra Nath of NINDS spoke fairly quickly and he presented a lot of details. I didn't take good notes, so others should fill in. - NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment - Immune...