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  1. Gemini

    NIH: ME/CFS "PEM" Focus Group Study Results Published

    The first paper from the NIH’s post-infectious ME/CFS study was published in Frontiers in Neurology: Characterization of Post–exertional Malaise in Patients With Myalgic Encephalomyelitis/Chronic Fatigue Syndrome...
  2. RYO

    NIH Intramural study update

    A newsletter was sent out today to study participants. I wish there was more data but I clipped study update section. “The Post-Infectious Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (PI-ME/CFS) study has been active since fall of 2016. Our team has decided to put together this...
  3. viggster

    Details on NIH study

    At the just-completed CDC Grand Rounds, Dr. Avindra Nath of NINDS spoke fairly quickly and he presented a lot of details. I didn't take good notes, so others should fill in. - NIH will do a 3 phase study, starting with observation (the first study w/ 40+ patients) through treatment - Immune...