• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To register, simply click the Register button at the top right.


  1. H

    Famvir for HHV-6?

    Hi everyone! I did a pretty thorough forum and Google search and am struggling to find any documentation that famvir works against HHV6, I see plenty of documentation that Valcyte is better for HHV-6, but my doc won't prescribe that. They rx'd famvir reactivated HHv-6 . Has anyone had success...
  2. gbells

    NIH isn't adequately funding CFS viral research because they believe the cause is unknown and this needs to change

    The CFS community has a big problem. National Institutes of Health is the major funding body for medical research in the United States. They only fund $15 million per year (frozen) for research on HHV-6 and $9 million per year for research on CFS. The problem is that researcher Bhupesh Prusty...
  3. lyran

    A Finnish researcher found a virus in the brain of a dead man, which may revolutionize our understanding of the human body

    I thought I post this article as it is somewhat related to Bhupesh Prusty's study on tissue specific signature of HHV-6 infection in ME/CFS Link to the article which is in Finnish I Google translated it and fixed some errors:
  4. D

    HSV/VCV/CMV/HHV-6 - how to combine meds

    Dear guys and gals, my friend got her HHVs tested a month ago and she was IgM positive for HSV, VCV, CMV and HHV-6. Her symptoms are mainly chronic pain, but other than that she is "healthy" (the rest of her bloodwork is OK) so these infections are probably in the low-grade/chronic territory...
  5. R

    Human Herpesvirus 6 Infection in Pediatric Liver Transplantation: Single-Center Study of Incidence, Outcomes, and Management - 25-01-2021

    https://academic.oup.com/jpids/advance-article-abstract/doi/10.1093/jpids/piaa166/6118583?redirectedFrom=fulltext#.YBbg_f82Ed8.twitter Krupa R Mysore, Tuan L Phan, Ryan W Himes, Deborah Schady, Karen W Eldin, Bhupesh K Prusty, Flor M Munoz Abstract Background Distinctions between HHV-6 primary...
  6. Hip

    HHV-6 researcher Dr Bhupesh Prusty also finds "something in the serum" of ME/CFS patients

    Four independent ME/CFS research groups have now found "something in the serum" of ME/CFS patients which adversely affects the energy metabolism of healthy cells in vitro, when those cells are exposed a drop of ME/CFS patients' blood serum. (1) Fluge and Mella in 2016 showed that when myoblast...
  7. gbells

    Giving Infectious Disease MDs one more try (no 3). The Lupus vs SEIDs Saga

    I thought I'd throw this experience out there. Yesterday I drove one hour to a remote infectious disease MD outside of the Raleigh Durham triangle (NC). The MD accepted Medicare (my insurance) and was recommended by a lyme disease group. I had previously seen infectious disease doctors at...