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  1. Pyrrhus

    Germany petition: ME patients need research and medical care!

    A petition is circulating asking for research and better medical care for ME patients in Germany: https://www.change.org/p/manfred-lucha-patienten-mit-myalgischer-enzephalomyelitis-me-benötigen-forschung-medizinische-versorgung?redirect=false I hear anybody can sign, not just Germans. Here is...
  2. J

    #MillionsMissing 2020 in Germany

    This year #MillionsMissing global protests will take place between May 9th–17th. #MillionsMissing Germany announced the participating cities from Germany today: :hug: Aachen, Erlangen, Freiburg, Gütersloh, Halle, Münster and Ravensburg :hug: These are more cities than in the years before (we...
  3. J

    Fundraiser for Dr. Prusty's Research (Würzburg University)

    A group of patients has started a fundraiser for Dr. Bhupesh Prusty's research at Würzburg University, Germany. All funds raised will go to the non-profit HHV6 Foundation and then be donated to Dr. Bhupesh Prusty's lab for his research. Dr. Prusty gave a talk at the NIH ME/CFS conference last...
  4. H

    Looking for EDS specialist in Germany

    I have a diagnosis of CCI/AAI from Dr. G. I am slightly hypermobil (4/9 of Beighton Score). Seeking to get a proper diagnosis, whether EDS is part of my issues or not. Does anyone know an EDS expert in Germany (south)?
  5. J

    #MillionsMissing 2019 in Germany

    This year, #MillionsMissing visibility actions will take place in Berlin, Munich and Halle (Saale) in Germany. HALLE (SAALE) | Marktplatz | Wednesday, May 8 | 2-4 pm MUNICH | Sendlinger-Tor-Platz | Saturday, May 11 | 2-4 pm BERLIN | Pariser Platz (vor dem Brandenburger Tor) | Sunday, May 12 |...