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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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doctors

  1. frozenborderline

    How do i get my doctor to pay attention to my case and be less scattered and more responsible ?

    I found an amazing immunologist and mast cell specialist. I thought "since my current me/cfs specialist is too scattered to help me well, this doctor should suffice, and maybe she can lead a bit more in treating my case rather than me having to do a lot of the steering". Well, our first visit...
  2. RyeRyeBread

    Advice for the *First* Doctor Visit?

    I'm seeing a new doctor, and I'm really hoping he's open to working through differentials and eventually diagnosis. However, I'm terribly scared that he will be everything we don't want in a doctor: unwilling, unbelieving, rude, "GET and CBT", etc. I have been keeping track of symptoms...
  3. 20somethingspoonie

    Looking for endocrinologist in UK

    Hello! As the title says, I'm looking for a private endocrinologist in the UK, preferably in the Manchester area. I'm specifically looking into Dr. Tara Kearney and Dr Annice Mukherjee, if anyone has any experience with them. Thanks in advance!
  4. 20somethingspoonie

    UK doctors who will prescribe meds

    Hello! I'm new to the UK and looking for a doctor who will prescribe meds. When I lived in the US, I had a psychiatrist who prescribed Modafinil, which is the only thing that has ever helped my ME/CFS. My current psychiatrist in the UK doesn't seem to believe in ME/CFS and won't prescribe...
    • 20somethingspoonie
    • Thread
    • doctor doctor recommendation doctors england medical advice medication meds united kingdom
    • Replies: 6
    • Forum: ME/CFS Doctors
  5. Lalia

    Margaret Moss

    Hi all, does anyone have experience working with a nutritionist in the UK named Margaret Moss? She specializes in multiple chemical sensitivity, and helping people who are reacting to food chemicals, broaden their diet. In some of the discussion around sulfation pathways, I’ve seen users link...
    • Lalia
    • Thread
    • doctors mcs multiple chemical sensitivity
    • Replies: 0
    • Forum: ME/CFS Doctors
  6. nyanko_the_sane

    Read Your Doctors Notes!

    https://www.nbcnews.com/health/health-news/why-it-s-important-patients-look-their-doctor-s-note-n1019111 Sometimes it is hard to tell if your doctor actually gets what you are telling them, or if they even believe you. Having received a few shocks and surprises after reading doctors notes, I...