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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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carmen scheibenbogen

  1. SWAlexander

    Prof. Carmen Scheibenbogen Recommendation of nutritional supplements

    Translation: Her latest video shows various options for treating ME/CFS and LC for the time being. Recommendation of nutritional supplements Nutritional supplement mitochondria metabolism. Vitamin B1, B2, B3, B6 (vitamin B complex) for 4 weeks CoenzymQ10 max 100 mg/day (Castro-Marrero J, 2021)...
  2. C

    Structural brain changes in patients with post-COVID fatigue: a prospective observational study (Heine et al, 2023)

    Summary Background Post-COVID syndrome is a severe long-term complication of COVID-19. Although fatigue and cognitive complaints are the most prominent symptoms, it is unclear whether they have structural correlates in the brain. We therefore explored the clinical characteristics of...
  3. C

    Carmen Scheibenbogen research update with SolveMe

    • Consul
    • Thread
    • autoimmunity carmen scheibenbogen hypoperfusion natural autoantibodies solveme
    • Replies: 10
    • Forum: Latest ME/CFS Research
  4. C

    Dysregulated autoantibodies targeting vaso- and immunoregulatory receptors in Post COVID Syndrome correlate with symptom severity (Sotzny et al, 2022)

    Abstract Most patients with Post COVID Syndrome (PCS) present with a plethora of symptoms without clear evidence of organ dysfunction. A subset of them fulfills diagnostic criteria of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Symptom severity of ME/CFS correlates with natural...
  5. Pyrrhus

    A prospective study of post-COVID-19 CFS following the first pandemic wave in Germany & biomarkers associated with symptom severity (Kedor et al 2022)

    A prospective observational study of post-COVID-19 chronic fatigue syndrome following the first pandemic wave in Germany and biomarkers associated with symptom severity (Kedor et al., 2022) https://www.nature.com/articles/s41467-022-32507-6 Main points: 42 coronavirus patients who reported...
  6. C

    Relevance of CellTrend results for treatment

    As most of you will already know, CellTrend offers a test panel for various autoantibodies, including autoantibodies against the adrenergic receptors, and autoantibodies against the muscarinic cholinergic receptors. This is important, as various studies have shown the presence of high levels...
  7. C

    Revisiting IgG antibody reactivity to Epstein-Barr virus in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its pote... (Sepúlveda et al, 2022)

    Revisiting IgG antibody reactivity to Epstein-Barr virus in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and its potential application to disease diagnosis Authors Nuno Sepúlveda, João Torrado Malato, Franziska Sotzny, Anna D. Grabowska, André Fonseca, Clara Cordeiro, Luís Graça...
  8. Pyrrhus

    Autoantibodies to Vasoregulative [GPCRs] Correlate with Symptom Severity, Autonomic Dysfunction and Disability in ME/CFS (Freitag et al., 2021)

    Autoantibodies to Vasoregulative G-Protein-Coupled Receptors Correlate with Symptom Severity, Autonomic Dysfunction and Disability in ME/CFS (Freitag et al., 2021) https://doi.org/10.3390/jcm10163675 Main points: This study from Carmen Scheibenbogen's group looked for correlations between...
  9. C

    Dyspnea in Post-COVID Syndrome Following Mild Acute COVID-19 Infections: Potential Causes and Consequences for a Therapeutic App...(Wirth et al, 2022)

    Dyspnea in Post-COVID Syndrome Following Mild Acute COVID-19 Infections: Potential Causes and Consequences for a Therapeutic Approach Wirth & Scheibenbogen 2022 Abstract Dyspnea, shortness of breath, and chest pain are frequent symptoms of post-COVID syndrome (PCS). These symptoms are...
  10. C

    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) (König et al, 2022)

    The Gut Microbiome in Myalgic Encephalomyelitis (ME)/Chronic Fatigue Syndrome (CFS) Authors: Rahel S. König Werner C. Albrich Christian R. Kahlert Lina Samira Bahr Ulrike Löber Pietro Vernazza Carmen Scheibenbogen Sofia K. Forslund Abstract Myalgic encephalomyelitis (ME) or Chronic Fatigue...
  11. SNT Gatchaman

    An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2021, Wirth et al)

    An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Klaus J. Wirth, Carmen Scheibenbogen and Friedemann Paul Link Full text link Abstract There is accumulating evidence of endothelial dysfunction, muscle and cerebral hypoperfusion in Myalgic...
    • SNT Gatchaman
    • Thread
    • carmen scheibenbogen cerebral blood flow cognitive dysfunction dysautonomia endothelial dysfunction intracranial hypertension sleep wirth
    • Replies: 37
    • Forum: Latest ME/CFS Research
  12. SWAlexander

    “Emerging Options for Autoimmune ME/CFS”: Scheibenbogen at the 2021 IACFS/ME Conference Sep 16, 2021

    Excerpt: In her “Emerging options for Autoimmune ME/CFS” presentation, Scheibenbogen laid out the case for an autoimmune cause of ME/CFS in at least a subset of patients. There’s the infectious trigger (often EBV – a stellar autoimmune disease trigger), evidence of increased family histories of...
  13. Boba

    Emerging Data Point to Underlying Autoimmunity in ME/CFS

    http://www.medscape.com/viewarticle/957987
  14. Pyrrhus

    Causal attributions and perceived stigma for ME/CFS (Froehlich et al., 2021)

    Causal attributions and perceived stigma for ME/CFS (Froehlich et al., 2021) Laura Froehlich, Daniel BR Hattesohl, Joseph Cotler, Leonard A Jason, Carmen Scheibenbogen, Uta Behrends https://journals.sagepub.com/doi/10.1177/13591053211027631 I haven't read the full paper, but I believe the main...
  15. Pyrrhus

    Herpesviruses Serology Distinguishes Different Subgroups of Patients From the United Kingdom ME/CFS Biobank (Domingues et al., 2021)

    Herpesviruses Serology Distinguishes Different Subgroups of Patients From the United Kingdom ME/CFS Biobank (Domingues et al., 2021) https://www.frontiersin.org/articles/10.3389/fmed.2021.686736/full Authors: Tiago Dias Domingues, Anna D. Grabowska, Ji-Sook Lee, Jose Ameijeiras-Alonso...
    • Pyrrhus
    • Thread
    • carmen scheibenbogen eliana lacerda francisco westermeier helena mourino luis nacul nuno sepulveda
    • Replies: 2
    • Forum: Latest ME/CFS Research
  16. Pyrrhus

    Pathophysiology of skeletal muscle disturbances in ME/CFS (Wirth and Scheibenbogen, 2021)

    Pathophysiology of skeletal muscle disturbances in ME/CFS (Wirth and Scheibenbogen, 2021) Klaus J. Wirth & Carmen Scheibenbogen https://translational-medicine.biomedcentral.com/articles/10.1186/s12967-021-02833-2 A paper describing how their previous hypothesis has now been augmented with an...
  17. Pyrrhus

    Hand grip strength and fatigability: correlation with clinical parameters and diagnostic suitability in ME/CFS (Jäkel et al., 2021)

    Hand grip strength and fatigability: correlation with clinical parameters and diagnostic suitability in ME/CFS (Jäkel et al., 2021) by Bianka Jäkel, Claudia Kedor, Patricia Grabowski, Kirsten Wittke, Silvia Thiel, Nadja Scherbakov, Wolfram Doehner, Carmen Scheibenbogen & Helma Freitag...
  18. R

    Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Efficacy of Repeat Immunoadsorption - Published: 30 July 2020

    https://www.mdpi.com/2077-0383/9/8/2443/htm Abstract (1) Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex neuroimmunological disease. There is evidence for an autoimmune mechanism for ME/CFS with an infection-triggered onset and dysfunction of ß2-adrenoreceptor...
  19. R

    Human Herpesvirus-6 Reactivation, Mitochondrial Fragmentation, Paper Pub. 4/1/20 - Dr. Prusty

    THE FIRST 31 POSTS IN THIS THREAD HAVE BEEN MOVED FROM Bhupesh Prusty: "we are on a perfect path for identifying potential transferable factors in ME/CFS blood that can cause mito dysfunction..." GoFundMe https://www.immunohorizons.org/content/4/4/201 Human Herpesvirus-6 Reactivation...
    • raghav
    • Thread
    • bhupesh prusty carmen scheibenbogen dr bhupesh prusty naviaux robert naviaux
    • Replies: 273
    • Forum: Latest ME/CFS Research
  20. pattismith

    IgG stimulated β2 adrenergic receptor activation is attenuated in patients with ME/CFS

    Brain, Behavior, & Immunity - Health Available online 5 February 2020, 100047 IgG stimulated β2 adrenergic receptor activation is attenuated in patients with ME/CFS Author links open overlay...
  21. Murph

    Immunoadsorption to remove ß2 adrenergic receptor antibodies in CFS/ME.

    PLoS One. 2018 Mar 15;13(3):e0193672. doi: 10.1371/journal.pone.0193672. eCollection 2018. Immunoadsorption to remove ß2 adrenergic receptor antibodies in Chronic Fatigue Syndrome CFS/ME. Scheibenbogen C1,2, Loebel M1, Freitag H1, Krueger A3, Bauer S1, Antelmann M1, Doehner W4, Scherbakov N4...
  22. Freddy

    Plasmapheresis study at Berlin (Charite Prof Scheibenbogen)

    At the Charite (Berlin) there is currently underway a study on plasmapheresis in patients with CFS at the immonology group of Prof. Scheibenbogen. I am a participant in this study and want to share my experiences. The study is based on the observation that they found in a subgroup of patients...
  23. Kyla

    Frequent IgG subclass and mannose binding lectin deficiency in patients with CFS

    http://www.sciencedirect.com/science/article/pii/S0198885915004656?showall%3Dtrue%26via%3Dihub
  24. snowathlete

    Antibodies to ß adrenergic and muscarinic cholinergic receptors in patients with CFS

    Loebel, Grabowski, Heidecke, Bauer, Hanitsch, Wittke, Meisel, Reinke, Volk, Fluge Ø, Mella, Scheibenbogen. Abstract Infection-triggered disease onset, chronic immune activation and autonomic dysregulation in CFS point to an autoimmune disease directed against neurotransmitter receptors...