• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

carers advocacy campaign

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    Time to step up ME advocacy – an interview with the founders of #ThereForME – Karen and Emma

    Can you tell us about your journeys that led to you becoming ME advocates? EGL: We are both carers to partners with Very Severe ME (resulting from Long Covid in 2022), and Karen has ME herself. It’s a lonely existence and in May we were both hanging out on Twitter (now X) sharing thoughts and...
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