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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    My treatment for Borrelia miyamotoi

    After almost 10 years I have been finally diagnosed to have Borrelia miyamotoi. My plan will include 6 weeks of I.V. antibiotics (Ceftazidim, Flagyl, Doxycycline) followed by Disulfiram. I am looking forward to see if I feel better after it. I will write updates once I start. I also read in...
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    Positive Borrelia miyamotoi detected - what is relapsing fever?

    Phage Borrelia qPCR test showed Positive; B. miyamotoi detected. From what I read online this is a new test that is high specificity test nearly 100% accuracy (some sources says more than 92%). What confused me is it says that Borellia miyamotoi is bacteria that causes relapsing fever. I don't...
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    Phage Borrelia qPCR - is false positive possible?

    I received results from Phage Borrelia qPCR from RedLabs and it says Borrelia Miyamotoi positive. From what I heard phage test is a direct proof of active infections while ELISA, Western Blot, PCRs can provide false negative or positive. I am wondering if with phage test false positive is also...
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    Abnormal hair fibers - Exploring possible link to tick borne illness

    I have been meaning to share this for a while – as a feel it could be of interest and perhaps helpful to a number of people here. First some background. My fiancé and I both became ill around 5 years ago with some mystery illness. Starting with fever, severe fatigue, headaches, swollen joints...