• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    My strange 'freeze' response when I try to focus on something - anyone else?

    Hi everyone, Part of my autonomic dysfunction seems to involve a strange kind of freeze response. I haven't seen it mentioned by other people - maybe hints of it - but not anywhere a description that maps onto my own situation. I wanted to describe it here and see if it is familiar to anyone...
  2. V

    What are symptoms of autoimmune encephalitis?

    I have a vague knowledge of it and have seen various posts scattered, so was wondering if those who have been through it can say some more about how it presented in them. Also interested in whether there is any connection to that and, for lake of a better term, (new onset) "neuropsychiatric" (I...
  3. nerd

    Google Trends not showing increased awareness for CFS/ME

    I created this plot to analyze if COVID-19 somehow contributed to an increased awareness for CFS/ME. The latest Google Trends data show increased searches for Long COVID in Google and YouTube - multitudes greater than for CFS/ME. There is no increased awareness for CFS/ME from Long-COVID...