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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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act up

  1. frozenborderline

    Great Direct action /civil disobedience by ME/CFs patients at the NIH

    https://openletteropenmedicinefoundation.com/brave-me-cfs-patients-protest-and-are-arrested-at-the-nih/ I wish I knew the full names of the patients to help publicize. I think one of them was whitney something. This is inspiring. I do wish it had more views though.
  2. frozenborderline

    Website about koroshetz, need help

    Hi all I'm working on a website about Walter koroshetz, Sort of continued off the #notenough4ME campaign from a couple years back that focused on koroshetz failure to do the right thing for ME/CFS funding at the NIH I need help with web design and even writing copy I already have the domain...