Search results for query: cmrc

I’ve just worked out that if we had had just half of the pe person spending the CMRC report said went to multiple sclerosis (MS) in the Uk we would have had £126m for research over the period 2006- 2020 instead of about £15 million (probably very generous overestimate )With a good portion of...

...whilst keeping us firmly down trodden. The funders certainly haven’t responded to the stark facts of their own report in a fitting way & the CMRCs own response in the report (CMRC work with the MRC) is equally lame (see here, page 17 )...

Found the presentation starting at 12mins - March 2020 CMRC Conference

For anyone wanting to learn more, Dr Bhupesh Prusty covered a lot of whats in the paper at the recent CMRC 2020 conference. He talks rather fast, but it does help understanding of the paper.

http://www.virology.ws/2020/03/18/trial-by-error-what-now/?fbclid=IwAR2k22UmwASX2oFywrSMkW9d6Aj6sWPyo4Hj1YgbVq0nX4lCa8Y4VxdqfTM Trial By Error: What Now?

Amazing stuff. I have such belief that Dr Prusty will fix us!

So that is Amazing and Nobel Prize nominating worthy if anybody were to ask me. QUESTION..any thoughts on: this antiviral phenotype...can anyone better explain this.??..is he saying we tend to NOT succumb to viruses the way normal healthy people would?

CMRC 2020 Bhupesh Prusty's presentation

...to broadcast live and/or upload as a recording following the conference. Please note that, due to the presentation of unpublished data, some speakers decline to be filmed. Details of livestreaming and/or filming will be made available nearer the time at...

...7UA Nina Muirhead BA(oxon) BMBCh(oxon) MRCS DOHNS MEd PGDipDerm Specialty Doctor in Dermatologic Surgery Chair of CFS/ME Research Collaborative (CMRC) Education Working Group Buckinghamshire William Weir Consultant Physician London Tom Wileman Professor Molecular Virology Quadram Institute...

@Simon excellent blog! In the US the NIH's Precision Medicine Initiative has set a goal of enrolling 1 Million+ people in their "All Of Us Research Program." It has already achieved about a quarter of that in its first year. Whole genome sequencing on all who enroll will start by the end of...

...It’s a remarkable technique and this is the ideal time for an ME/CFS study. UK researchers, including Chris Ponting, colleagues from the CMRC and the CureME team are aiming to put a proposal in for a large GWAS later this year. The study might need as many as 20,000 patients. But...

http://www.virology.ws/2019/01/22/trial-by-error-my-six-month-review-2/?fbclid=IwAR3c-JjLbRbiSGjwzub_UPnHaBtbdNoS-gv9Avac-q77_oa17ZE-7fp3UKM

http://www.virology.ws/2018/10/01/trial-by-error-the-cfs-me-research-collaborative-conference/

http://www.virology.ws/2018/09/17/trial-by-error-so-whats-happening-with-the-magenta-trial/

http://www.virology.ws/2018/06/11/trial-by-error-more-letters-about-bmjs-flawed-pediatric-studies/

...in ME Jun 1, 2017 – David Tuller’s Trial By Error Crowdfunding Campaign May 22, 2017 – Trial By Error, Continued: ME Research UK Drops Out of CMRC May 15 2017 – Trial By Error, Continued: The CMRC Affirms Full Support for Libelous Esther May 10 2017 – Trial By Error, Continued: CMRC to...

...in the last few years that until the PACE " wall" is blown away there will be no significant progress in the UK. I do feel that change is coming with Unrest/David T/Westminster debates etc, It is still far too slow, but EC removal from CMRC and her reassignment away from ME is great progress.

http://www.virology.ws/2018/03/07/trial-by-error-yesterdays-news-from-the-cfs-me-research-collaborative/

Later today, David says he will be writing something about Dr Esther Crawley's departure from the CMRC.............will he know more about what is meant by her change of role at Bristol University? Is she now Dean, head of research................or cleaning the staff loos...

really? after all these yrs of CMRC pontificating? talk about being slow to catch on! :bang-head: I mean if they do then it's to be welcomed, but it concerns me that they mean... lets find a bit more 'bio' to underpin/prove the psychosocial? It all sounds encouraging which is great, but I'm...

Looking through the minutes of the board meeting https://www.actionforme.org.uk/uploads/images/2018/03/cmrc-draft-minutes-060218.pdf this appears to be a positive change in direction. Although one area of concern is that BACME wishes to do a joint conference with the CMRC which to me is a...

Seems to be doing a replication study on antibiotics v surgery in appendicitis- so ironically something to do with research! https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-018-2520-z

Suddenly the link vamooshed and a new message appeared which says thsi: Now what could that role be? Has the university finally come to their senses? :p Is she now cleaning the labs?:D Curious. https://www.actionforme.org.uk/news/%E2%80%8Bcmrc-update-new-purpose,-objectives-and-values/

Woohoo! EC is standing down as VP of the CMRC!!!!!

https://www.actionforme.org.uk/news/%E2%80%8Bcmrc-update-new-purpose,-objectives-and-values/ CMRC update: new purpose, objectives and values March 06, 2018 A new, ambitious, scientific strategy has been developed by the UK CFS/ME Research Collaborative (CMRC), of which Action for M.E. is an...

https://www.meaction.net/2018/02/26/read-about-the-westminster-hall-debate-on-the-pace-trial-and-its-effects-on-people-with-me/

...establishment tactics involving wasting several years on initiatives that are already designed to deliver nothing of value (MRC “expert” panels, cmrc, mega, etc.) have made us wary of the corrupt systems in place. Based on their track record NICE do not yet deserve any such trust. ME...

...reason but a number of important organisations seem to be politely distancing themselves from EC. Me research uk and Julia Newton have left the cmrc in the last year. It may only be £6000 but contributing to research signifies support. Maybe EC just found a better deal and generously gave it...

http://www.virology.ws/mecfs/ links to all articles by David Tuller related to ME/CFS that have been published at virology blog. Only a few re shown below/ Please look at the link for the full range May 15 2017 – Trial By Error, Continued: The CMRC Affirms Full Support for Libelous Esther