Search results for query: 2 day CPET

In May of this year NICE issued an implementation directive regarding the new ME guideline. I have yet to see any evidence that NICE is putting any efffort into promoting the new ME guideline. I have been in discussions with staff from my local university who train a variety of health...

From David Tuller Trial by Error | Fall 2022 https://crowdfund.berkeley.edu/project/33528 Trial By Error: Reporting on ME, ME/CFS, long Covid, and "Medically Unexplained Symptoms" As in previous years, October is crowdfunding month at the University of California, Berkeley, and I am once...

I also have a Garmin. I use a VivoActive 4s. I use it keep an eye on my heart rate, so that my dysautonomia symptoms are not worsened and trigger a PEM crash. I primarily use pacing techniques to manage my exertion level, and specifically am attempting to practice time-based pacing, instead of...

Can enterovirus RNA be found in the blood? The literature indicates that, after the acute phase of an enteroviral infection, the virus can only be found in tissues, but not in the blood. But are there any exceptions to this rule, perhaps for some specific groups of patients? 1) One small study...

Could you try a CPET with Workwell or do you really need the ICPET?

systrom got me in for a CPET relatively quickly. then his staff put me on the cancellation list and ended up bumping up the date 2 months sooner than originally scheduled. i don12t know if i will be able to make my appointment because i’m so unwell so maybe you’ll end up taking my spot (scheduled...

Gotcha. That makes sense, glad there is an answer. Thanks for the info.

I believe you're referring to enterovirus antibody testing, not to enterovirus RNA testing. Enterovirus RNA is not expected to be found in the blood, as was suggested by (Bouquet et al., 2019): Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing PEM following...

Thanks for the response. It makes a lot of sense what you said about the BP. When another dysautonomia doctor first recommended Midodrine to me, I asked her about the risk of BP being raised, but she did not seem alarmed, given my readings at the time. I am on 2.5mg every 8 hours, so not sure if...

Systrom prefers mestinon to midodrine and florinef because the latter two drugs increase blood pressure. He will prescribe midodrine and florinef if mestinon doesn't work, but he is cautious about using them for that reason. Midodrine and florinef are fine if you are hypotensive, but if you...

I read thru this...in my brain-impaired way. They discuss the two day CPET we see use at Harvard. To ID ME/CFS.... the paper discusses a lot of paired and unpaired statistics and controls. they also mention: in the discussion a group of Athletes. I cannot make further sense of it...but I...

Abstract Background The aim of this study was to verify whether the mean percentage of oxygen use in the aerobic-anaerobic transition phase or isocapnic buffering (IB) was lower in women with chronic fatigue syndrome (CFS) compared to healthy women, and if this variable could be used as a...

@sloopercat - I'm not sure if you are helping your daughter, your mother, another relative, or a friend, but if she worked as a teacher for 27 years until she couldn20t anymore due to worsening ME/CFS, she certainly deserves to have her long-term disability application approved. I21m sorry she...

Does anyone have an example of a well written presentation? We are already in the appeal stage, did not have the CPET or NPE during the fist submission. We did talk to an attorney yesterday we had been consulting with, after sending him the additional evidence we had gathered. We had consulted...

If the results of a 2-day CPET and a neuropsych test were abnormal enough, you have a decent shot of getting on private disability. There are a handful of lawyers who specialize in ME/CFS disability cases -- Andrew Kantor, among others -- who will offer a free consult to answer questions and...

DMed you Another interesting study finding supporting the use of PPAR Delta agonists to correct dysfunctional fatty acid oxidation. https://www.healthrising.org/blog/2022/05/18/long-covid-exercise-cpet-mitochondria/ This study, 22Decreased Fatty Acid Oxidation and Altered Lactate Production...

My understanding is that a lowered anaerobic threshold can indeed be detected in a single CPET. But I don23t know if it can be detected in real time, during the administration of a CPET. The anaerobic threshold might need to be calculated after the CPET is complete. The Workwell Foundation...

I kept meaning to come back and say something about this. I24m not sure of the answer but there was a man on YT who had the testing through Dr. Klimas office and though he didn25t say (I went back and listened again), it sounded like it was just a one day test to AT (Anaerobic threshold). ?? This...

I assume the answer to this question is no, because if it were possible more people would be doing it, but I haven26t found it in the forums so I have to ask. I know that a 2-day CPET is needed to distinguish ME/CFS from deconditioning. But can the anaerobic threshold not be discovered in a...

If you absolutely must do neuropsychological testing, Gudrun Lange may be a good one to do it, as she is close with Benjamin Natelson and reportedly has significant experience with ME patients. But she is definitely not cheap. But if you27re lucky enough to be able to tolerate a CPET, you may...

Abstact: Post-exertional malaise (PEM) is a hallmark symptom of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). We monitored the evolution of 1,157 plasma metabolites in 60 ME/CFS cases (45 females, 15 males) and in 45 matched healthy control subjects (30 females, 15 males) before...

I28ve been thinking a bit about the abnormal RBC hypothesis recently, and it seems like results like this would fit right in. If poorly deformable RBCs aren29t able to pass through capillaries efficiently, and proper gas exchange in the lungs requires proper RBC flow through the pulmonary...

She did her 2 day CPET this week. Not too wiped out. The doctor that evaluated the results confirmed what we suspected. He even signed the disability form that meets the criteria for disability for SS, based on her age. Nice people to work with. His diagnosis after the second day test is: 1)...

Hopefully I'm not derailing the thread too much, but @Rebeccare are you saying you have had multiple CPETs? Have you found the tests to be helpful for managing your thresholds for activity and finding your energy envelope? My doctor offered me the option of taking a CPET, but I opted not to for...

You heard from the health guru's that some of these diagnostic studies dont directly diagnose cfsme. Well my opinion of that is its bs. Use tests as biomarkers such as the 2 day exercise test, nk function test, cd8 T cell function test, different cytokine studies etc used in conjunction with the...

I believe that muscle testing is likely to be one of the best objective markers to use in ME research. A couple papers I linked in another thread (Jammes 32 Retornaz, 2020; Jäkel et al., 2021) discuss the use of handgrip strength testing as a possibility. An older study also used strength testing...

All you need is one caring and cooperative doctor. If yours isn't helping, maybe try another?

Do you have any knowledge of how their methodology might compare with any of the other EEG work that has been done on ME patients to date, such as by the late Marcie Zinn, or the Canadian research that I believe Dr. Hyde was involved in? EEG is one of the things I wish I had been able to access...

Related discussion: Workwell is now offering EEG brain scans pre/post CPET to assess cognitive function in response to exertion. https://forums.phoenixrising.me/threads/workwell-is-now-offering-eeg-brain-scans-pre-post-cpet-to-assess-cognitive-function-in-response-to-exertion.86963/

Related discussion: Workwell is now offering EEG brain scans pre/post CPET to assess cognitive function in response to exertion. https://forums.phoenixrising.me/threads/workwell-is-now-offering-eeg-brain-scans-pre-post-cpet-to-assess-cognitive-function-in-response-to-exertion.86963/