Search results for query: "white matter lesions"

  1. heapsreal

    High dose melatonin

    I know there's a million threads on this but why not another one, maybe more updated??? Some of the info I found on high dose melatonin was it being used for sleep and circadian rhythm disturbances, which many of us have an idea about. There's information pointing high dose melatonin at...
  2. Pyrrhus

    Jarred Younger Presents: How We Can See ME/CFS Inflammation In the Brain

    Yes, depending upon how much migration there is, it could indeed be earthshaking. But previous research seems to suggest that the B and T cells are trying to migrate into the brain, but they get trapped in the perivascular spaces surrounding the brain's blood vessels. As long as the blood-brain...
  3. Pyrrhus

    Alteration of Cortical Volume and Thickness in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (Thapaliya et al, 2022)

    Always a great question to ask! :thumbsup: You may be interested in this discussion about "normal" brain scans: MRI: White Matter Lesions?! https://forums.phoenixrising.me/threads/mri-white-matter-lesions.79023/
  4. Pyrrhus

    Symptoms correlating with Acquired Brain Injury (ABI)

    Thanks so much for sharing that information! So Traumatic Brain Injury (TBI) is just one type of Acquired Brain Injury (ABI). You might find the following discussions interesting: Post-Concussion Syndrome may come with PEM...
  5. Pyrrhus

    WMLs and Post Concussion Syndrome - ME connection?

    I don't know if it helps, but you may be interested in these discussions: White Matter Lesions?! https://forums.phoenixrising.me/threads/white-matter-lesions.79023/ Post-Concussion Syndrome may come with PEM...
  6. mysticmagnolia

    WMLs and Post Concussion Syndrome - ME connection?

    Hello all, wanted to check in with a question. Some may recall my (34F) posting last year about the discovery of white matter lesions on my brain MRI. Well, since then, I have been on a very strange journey... where I went to a specialist cognitive assessment clinic and their neuroscientists...
  7. vision blue

    periventricular changes white matter -encephalitis normal for cfs?

    Hi @Zebra Thought i hadn't seen you in a while- hoped grazing in a nice green pasture. Hope whatever setback you have is on the upswing again. Interstingly, i just came across that dizzy and balance center in chicago for unrelated reasons. I wondered why they were posting on something quite...
  8. Zebra

    periventricular changes white matter -encephalitis normal for cfs?

    There's also a PR thread on general white matter lesions: https://forums.phoenixrising.me/threads/white-matter-lesions.79023/
  9. Zebra

    periventricular changes white matter -encephalitis normal for cfs?

    Hey, @vision blue I hear you! Can't really say more right now, due to illness, but I did find some easy-to-read information from a dizziness and balance center in Chicago specifically about periventricular white matter lesions, which may, or may not, be ischemic. I know we usually only share...
  10. Nord Wolf

    Vision Loss with PEM

    Pyrrhus, You are correct in that MRIs are not without fault and the technology does have its limits. Even the highest set imagery of an MRI cannot see everything. When my wife was going through the diagnosis processes for Parkinson’s, the MRI would show a general possible pattern. Once it...
  11. Pyrrhus

    Vision Loss with PEM

    Just in case this interests you, there is a discussion of the potential limitations of brain MRIs to diagnose neurological condition: https://forums.phoenixrising.me/threads/white-matter-lesions.79023/
  12. vision blue

    MRI: White Matter Lesions?!

    I was going to make that same point about the white matter lesions but less poetically. If something is non-specific, they just ignore it. So if your WBC is low or your SED rate is high, they just shrug- could be anything. Agree used to be interpreted as MS back when the detection threshold of...
  13. heapsreal

    MRI: White Matter Lesions?!

    Yes pretty big dwings in bp from 130/70 -180/110, usually high when getting headaches. In the mid 1980s when Cheney and Peterson were in the Tahoe epidemic they were finding many cfs pts with UBOs on their MRIs, unidentified bright objects. I think they are the hyperintensities but dont quote...
  14. vision blue

    MRI: White Matter Lesions?!

    While I didnt have hyper intenities/white matter leaions on my brain MRI about 5 years ago, I did have brain “shrinkage” I believe around the perivertricular area (too depressing to look ut up to remibd me) . It was attributed on the report (and by my neuro) as “aging related” but clearly I...
  15. Pyrrhus

    Social Media Images

    Discussion thread: https://forums.phoenixrising.me/threads/white-matter-lesions.79023/ Source: https://search.creativecommons.org/photos/9fc223b3-3f80-40a0-a045-99a89069eb8f Author: National Institutes of Health License: Public domain, not copyrighted Modifications: none
  16. heapsreal

    MRI: White Matter Lesions?!

    For what its worth. December 2020 had an unsual headache that was constant until about march but varying in intensity. Often wake at 2am or some crazy time from a headache and sometimes vomitting from them. Abit weird waking up suddenly like that. Saw a neuro who eventually ordered the mri. A...
  17. A

    Should i get this mri tomorrow of brain?

    For ME it does not usually accomplish much but it does rule out some other non ME diagnoses. I've had several, i have multiple white matter lesions. Could be MS though at present they don't think so. For long covid i have no idea if it would prove useful for not. I doubt anyone can answer that...
  18. Pyrrhus

    Dilated perivascular spaces and fatigue: is there a link? Magnetic resonance retrospective

    Related discussion: White Matter Lesions?! https://forums.phoenixrising.me/threads/white-matter-lesions.79023/
  19. M

    MRI: White Matter Lesions?!

    20 years ago at the age of 40 my MRI reflected white matter lesions in the pons and midbrain. A neurologist and my primary said that it appeared to be the beginnings of Multiple Sclerosis. Other neurologists have not agreed. Subsequent MRI's indicated that there is no change of note.
  20. PatJ

    MRI: White Matter Lesions?!

    I've had them show up on multiple MRIs. None of the neurologists I've seen thought that the lesions had any significance. One neuro said they can happen from rough sports, and that they're common in people with a history of migraine. Here is a search of Phoenix Rising that lists a lot of past...
  21. A

    MRI: White Matter Lesions?!

    A friend of mine had this show up in an MRI scan. They were told that it was probably associated with the migraines that had been having for years. So in their case NOT an indication of MS, Dementia or any of the other nasty things! Results of scans on their own are not a very good way of...
  22. Zebra

    MRI: White Matter Lesions?!

    Hi, @Prefect. I have not had white matter lesions present on my brain MRIs, but I wanted to respond today because I am concerned for you. I am under the care of an excellent neurologist, and I know that if a radiology report indicated that I had *10* white matter lesions that 1) she would...
  23. Prefect

    MRI: White Matter Lesions?!

    My MRI shows 10 white matter lesions in the periventricular regions of my brain, each about 4mm in size. Funny thing is the neurologist who ordered it told me my MRI is normal except for compacted debris in my right maxillary sinus, and made no mention of the lesions. I found out later by...
  24. C

    earworm torment (a.k.a. auditory imagery loop)

    Hello I can not reach you. Could you please contact me please? Thanjs
  25. SmokinJoeFraz93

    Feel a horrible sensation when watching TV, listening to music and even reading

    I keep coming across LDN quite often! What symptoms would this help? And where Can I get it In the UK? Thanks.
  26. PatJ

    Feel a horrible sensation when watching TV, listening to music and even reading

    I've seen three neurologists, a neuro-opthalmologist, a psychiatrist, and multiple GPs. 1) One was a former migraine specialist and focused on the symptoms he recognized, my history of migraine in my teens, and white matter lesions in my brain; then prescribed various ineffective meds (although...
  27. A

    ME/CFS Collaborative Research Centers & Data Management Center Announcements

    Can you elaborate, i had an MRI and brain spect done, the spect found nothing but multiple white matter lesions was found on the MRI, though my images were graded by a staff technician without an ME/CFS specialty.
  28. Woolie

    Whence Wyller? CBT/GET Proponent Uncovers Distinct Biological Signature (???)

    Okay, maybe I should put it the other way around. Psychologists have always been interested in new ways of measuring psychological phenomena. Sure we have always had tried-and-true methods like self-report questionnaires and button press tasks. But these measures have a lot of limitations. When...
  29. C

    earworm torment (a.k.a. auditory imagery loop)

    Hello, I have same illness for many years. I want to get rid of it. could you please how you used NAC?
  30. JaimeS

    Comment by 'JaimeS' in 'Trip to the neurologist'

    ...time he has been practicing as if that made him somehow omniscient." <--- ooooh, we got a bada$$ here. If you don't mind, I'd love to hear the results of the MRI -- CCC says "white matter hyperintensities" or "white matter lesions" but I've never seen this evidence gathered and peer-reviewed...