Search results for query: Spickett

  1. M

    Dr Gavin Spickett

    Hi Chelsea, I have been accepted to Dr Spickett too but am still waiting an appointment date. Please can you let me know how you get on as you will no doubt be seen long before me! Many thanks :)
  2. M

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    Did you get on well at your appointment with Dr Spickett? I am just waiting for a date to come through and would be grateful for any advice /pointers you can give me thanks :)
  3. M

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    Hi Carole I am new here so reading through some old posts I know! Is it possible you can let me know how your apppointment went as I have been referred and am waiting for a date! PM me if you would rather - I would be very grateful thanks :)
  4. M

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    Hi could you enlighten me on what happens at the appointment with Dr Spickett as I am currently awaiting an appointment date? I would be really grateful thankyou :)
  5. M

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    Hi could you possibly let me know what happens at the appointment with Dr Spickett as I am currently waiting for my appointment to come through. I am new to all of this! Many thanks :)
  6. Cheryl M

    julia newton newcastle

    ...back negative), and that was that. Her remit is obviously limited to patients with POTS. If anyone is interested, I have also seen Gavin Spickett in Newcastle twice and both times he said I could not have ME because I was depressed. I have spent the last nine months trying to get an...
  7. Deepwater

    UK thoughts please

    Nothing at all in the western half of England, then?
  8. C

    UK thoughts please

    ...Professor Julia Newton (Newcastle), Dr Vinod Patel (Nuneaton), Dr Sue Pemberton/Yorkshire Clinic (Private but takes NHS referrals), Dr Gavin Spickett (Newcastle) We are probably going to use the next MEA website poll to look at the overall level of satisfaction with NHS hospital based...
  9. C

    UK thoughts please

    ...Professor Julia Newton (Newcastle), Dr Vinod Patel (Nuneaton), Dr Sue Pemberton/Yorkshire Clinic (Private but takes NHS referrals), Dr Gavin Spickett (Newcastle) We are probably going to use the next MEA website poll to look at the overall level of satisfaction with NHS hospital based...
  10. C

    MEA Directory of NHS Services for people with ME/CFS in the UK

    NHS referral services for people with ME/CFS in the North East of England - Dr Gavin Spickett, Professor Julia Newton et al - are currently being discussed on the MEA Facebook coverage of this revised directory information: https://www.facebook.com/ME-Association-171411469583186/
  11. Cheesus

    UK doctor - North east?

    Hi Greenleaves Welcome to the forum. Dr Spickett is an immunologist at the RVI in Newcastle who specialises in CFS/ME. My understanding is that he is the regional CFS/ME 'champion'. I have had one of my many assessments with Dr Spickett, and it was by far the most thorough. He won't offer you...
  12. Never Give Up

    Dr Gavin Spickett

    Hi Chelsea, I do not know anything about Dr. Spickett, but searched the archives and found quite a bit. You might give it a read. http://forums.phoenixrising.me/index.php?search/26486799/&q=Spickett&o=date&c[node]=32
  13. C

    Dr Gavin Spickett

    Hi there! I've not been able to find anything even close to recent about Dr Spickett's service at the RVI in Newcastle, so I'm hoping you guys might be able to shed some light for me! I was referred a month or so ago to Dr Gavin Spickett and lucky for me, he accepted my referral. I'm due to see...
  14. voner

    What evidence is there that ME/CFS is more autoimmune than chronic infection?

    @Jonathan Edwards, I am bumping this, because I would also like to hear your replies to these questions posed by BurnA...
  15. BurnA

    What evidence is there that ME/CFS is more autoimmune than chronic infection?

    ...Epub 2008 Sep 19. Postural orthostatic tachycardia syndrome is an under-recognized condition in chronic fatigue syndrome. Hoad A1, Spickett G, Elliott J, Newton J. But perhaps more interesting this paper identifies POTS symptom as a distint subgroup in response to exercise in CFS patients...
  16. Research 1st

    CFS Specialist in the UK

    ...missing from the NHS CFS website. Such cowards. In Newcastle, officially for 'CFS' you'd get a referral to the 'CFS/ME' service to see Dr Spickett (Immunologist who then refers on to psych CFS service for....you guessed it, CBT/GE) .Instead, ask for a referral to the falls and syncope...
  17. S

    New Rituximab ME/CFS open-label phase II study with rituximab maintenance treatment

    ...with POTS seems extremely low - I've seen estimates of 85% and higher. The [30] reference in the paper is this one: Lewis I, Pairman J, Spickett G, Newton JL (2012) Clinical characteristics of a novel subgroup of chronic fatigue syndrome patients with postural orthostatic tachycardia...
  18. S

    Please can you help? We are desperate!

    ...else. Newcastle published a paper showing that about 40% of the patients referred to them didn't have ME. The doctor's name is Dr Gavin Spickett and his details are on this recently-updated MEA list. Your mum's GP should be able to refer you even if she lives outside the Newcastle catchment...
  19. Cheesus

    Blood test abnormalities

    ...any of the other stuff and I am certainly not a doctor. If you live anywhere in Northern England I would suggest seeing the immunologist Dr Spickett at the RVI in Newcastle. He is the regional ME/CFS NHS 'champion'. I saw him recently and he gave me a very thorough checkup and reviewed my...
  20. S

    julia newton newcastle

    The benefit would be if you've been misdiagnosed with ME and he's able to come up with another diagnosis. That would then be for your own PCT to treat.
  21. Hell...Hath...No...Fury..

    julia newton newcastle

    I'm not sure how much could be gained from Dr. Spickett as he will see people who aren't from his catchment area but no treatment could be provided. I live only 2 miles in the wrong direction and this is what i was told by his secretary unless things have changed.
  22. S

    julia newton newcastle

    ...to the clinic and that the tests are showing that she has a different condition? That's one advantage I can see in going to Newcastle - Dr Spickett there (also in the ME/CFS unit) has the reputation of being able to rediagnose people with accuracy (but from the sounds of it, so does Prof...
  23. T

    POTS Associated with Significant Symptoms & Impairment -- BMJ article & pop press response

    I read this paper. Nowhere does it say/prove that people with POTS have been misdiagnosed with CFS (as suggested in some of the media coverage). The only real data that is close to the newspaper headlines that 1/3 with CFS really have POTS is this statement on an old study: ------- -------...
  24. biophile

    Adverse events and deterioration reported by participants in the PACE trial of therapies for CFS

    ...some have occurred. Re "independent assessors of the trial safety data", from the Lancet paper: Hiroko Akagi, Alastair Miller, and Gavin Spickett. Good point about the questionable definition of morbid obesity used. "Basically, if you report adverse effects, they're implying it's because...
  25. WillowJ

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    paper is here: http://www.ncbi.nlm.nih.gov/pubmed/21132135 The previous time they had found ~60% incorrect diagnoses
  26. Cheesus

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    ...a keen eye for missed or mis-diagnoses. I spoke to my NHS specialist today and she said if I still had questions regarding my diagnosis Dr Spickett is the man to talk to. He is apparently 'extremely thorough'. My mum tells me he wrote a paper on misdiagnoses and found that >40% of people...
  27. S

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    No I didn't - kind of wish I had. Good luck!
  28. Cheesus

    Newcastle, UK: Drs Spickett/Newton - any experiences?

    @Sasha Did you see Dr Spickett in the end? My GP has just referred me...
  29. D

    Clinical characteristics of a novel subgroup of chronic fatigue syndrome patients with POTS

    * I gave each sentence its own paragraph