Search results for query: pace trial

  1. Countrygirl

    Prof Brian Hughes: Psychogenic ME/CFS: Turning the Nostalgia Up to Eleven

    Prof Hughes writes brilliantly on the increasingly desperate Three Desperadoes Psychogenic ME/CFS: Turning the Nostalgia Up to Eleven Written by Brian Hughes on November 24, 2021 https://thesciencebit.net/2021/11/24/psychogenic-me-cfs-turning-the-nostalgia-up-to-eleven/
  2. Countrygirl

    Dr David Tuller: NEW PAPER FROM PACE AUTHORS REPEATS BOGUS ARGUMENTS AND DEFENSES

    https://www.virology.ws/2021/11/20/trial-by-error-new-paper-from-pace-authors-repeats-bogus-arguments-and-defenses/?fbclid=IwAR2N5OrFvmWK2RhTX3d69lxMC4R4lqRrqrfSgMMfBCbgTuwlb-iMsnCB2Ec DAVID REPORTS ON THAT PAPER BY THE THREE DESPERADOES TRIAL BY ERROR: NEW PAPER FROM PACE AUTHORS REPEATS...
  3. L

    Why does barely anyone know that CFS exists?

    If there are tens of millions of people around the world with CFS, why is there almost no public awareness of it? And why is no one working to raise awareness?
  4. Countrygirl

    Dr David Tuller: Losers in NICE Guideline Fight Remain Defiant Despite Public Repudiation of Their Claims

    https://www.virology.ws/2021/10/31/trial-by-error-losers-in-nice-guideline-fight-remain-defiant-despite-public-repudiation-of-their-claims/comment-page-1/?unapproved=62451&moderation-hash=381a4f85b16f7f599966da79d5fc3174#comment-62451 Trial By Error: Losers in NICE Guideline Fight Remain...
  5. Countrygirl

    Dr David Tuller: PACE Authors Now Blame “Misunderstandings” for GET/CBT Criticisms

    https://www.virology.ws/.../trial-by-error-the-pace.../... Trial By Error: PACE Authors Now Blame “Misunderstandings” for GET/CBT Criticisms 23 October 2021 by David Tuller 1 Comment By David Tuller, DrPH
  6. Countrygirl

    Dr David Tuller: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline

    https://www.virology.ws/2021/10/18/trial-by-error-advocates-issue-hopeful-comments-after-nice-pow-wow-on-me-cfs-guideline/?fbclid=IwAR2qHJ4ZlGTGQj-MVmgcwVWE14K19khImbMgMhA4F1qcZ40TTKvUIWsFuB0 Trial By Error: Advocates Issue Hopeful Comments After NICE Pow-Wow on ME/CFS Guideline 18 October 2021...
  7. Countrygirl

    Dr David Tuller: Please Support David's Crowdfunding: Update

    https://crowdfund.berkeley.edu/project/27513 PLEASE REMEMBER TO DONATE TO DAVID'S CROWD-FUNDING. HE HAS RAISED 25% OF THE TOTAL SO FAR. See link above...
  8. Pyrrhus

    Graham McPhee (@Graham)

    The great Graham McPhee (@Graham) passed away yesterday. He was an exemplary citizen-scientist who helped expose problems with the PACE trial and co-authored a paper on the insufficient monitoring of harm in CBT/GET clinics. He was also an all-around good guy liked by all.
  9. Pyrrhus

    Francis Collins steps down from the NIH

    U.S. National Institutes of Health Director Francis Collins is stepping down as head of the NIH. He was one of the very few ME supporters that we had inside the NIH. He had great plans for ME research but encountered fierce resistance from inside the NIH. He had also been heavily criticized by...
  10. Countrygirl

    Dr David Tuller: Please Support David So He Can Continue to Champion The ME Community

    ...A Short Recap I launched the "Trial By Error" series on Virology Blog in October, 2015, with a 15,000-word investigation of the disastrous PACE trial, which tested cognitive behavior therapy and graded exercise therapy as treatments for the illness or cluster of illnesses variously known as...
  11. Countrygirl

    Dr David Tuller: Good Long Covid Coverage from Atlantic; Skeptical Coverage from New Yorker and Others

    https://www.virology.ws/2021/09/24/trial-by-error-good-long-covid-coverage-from-atlantic-skeptical-coverage-from-new-yorker-and-others/?fbclid=IwAR1YkNZBDamPu6dS6FzO4fPMsRYSgw4RUx7v8931AI6LUytoRHQSIKILgs8 Trial By Error: Good Long Covid Coverage from Atlantic; Skeptical Coverage from New Yorker...
  12. frozenborderline

    Polybio (small org founded by michael vanelzakker and amy proal) has announced first cci study in ME/CFS

    Here's the tweet announcement. I expect lots of discussing about this , its very exciting news , but I am concerned they are not using upright mri if I read btwn the lines. (Upright mris in 7Tesla dont exist I think, not even in 3 tesla) Anyway I will post my thoughts about this in a...
  13. SWAlexander

    On Twitter: It’s mind-boggling that someone like Per Fink has control over #ME and #LongCovid treatment in Denmark.

    ...protection to patients if it is just ignored by physicians-who-feel-they-know-better. He denies bio research, refers to debunked PACE trial and has seriously harmed patients (Karina case). The man should not have any influence at all. 1/4 His horror clinic is literally called: “Research...
  14. Phoenix Rising Articles

    Article Science In The Age of Dogma: A Conversation with Dr. William Weir

    ...there is evidence that GET and CBT are being advised in some treatment centres, applying the same principles as were used in the PACE trial — despite its egregious shortcomings. In such instances, insanity is clearly still in charge. Phoenix Rising: People with ME/CFS experience high levels...
  15. Janet Dafoe

    Ron Davis statement about NICE’s pausing publication of new guidelines

    Ron Davis Statement on NICE pausing new guidelines NICE has abruptly paused the publication of it’s new guidelines for ME/CFS, arguing that those who are treating patients need to agree with the guidelines. This is a false argument. Medical advice must follow the evidence and not personal...
  16. Countrygirl

    The NICE Round Table Meeting to be postponed to October with the Royal Colleges' Prof Dame Carol Black as Chair

    The NICE Round Table is to be held on Friday 17th September. The 'independent chair' is Prof Dame Carol Black. Note her work for the DWP and views of illness and work. https://en.wikipedia.org/wiki/Carol_M._Black?fbclid=IwAR2ixHg56G_9AzuVojZZB5hw0oaEgLagqi7wZ6s_SogLl9jC0skD2qk0O8c Although...
  17. Countrygirl

    Wilful Ignorance? Margaret Williams' new blog on the NICE fiasco

    ...or discussed by the GDG, its remit being only to consider randomised controlled trials (RCTs) of CBT and GET and in particular, the PACE trial; furthermore, the final assessment of the “evidence” was undertaken by NICE’s permanent staff, not by the GDG. Despite strenuous efforts to find in...
  18. Countrygirl

    NICE are NOT going to publish the new guidelines tomorrow

    NICE has put up a notice to say they are NOT going to publish the new guidelines as arranged as medical professionals who treat ME patients object to them. :cry::bang-head::bang-head...
  19. WantedAlive

    ME/CFS Comic Series

    Hello there, I've had a few comics done to capture some of my own experiences and observations during my journey with ME/CFS. Unfortunately, as I've become more severe, my ability to find humour has subsided, and I've run out of ideas. Maybe members can contribute some more ideas? If your ideas...