International ME/CFS and FM Awareness Day Is On May 12, 2018
Thomas Hennessy, Jr., selected May 12th to be our international awareness day back in 1992. He knew that May 12th had also been the birthday of Florence Nightingale. She was the English army nurse who helped to found the Red Cross as well as the first school of nursing in the world.
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"You Can't Ignore ME NOW"

Discussion in 'Millions Missing Campaign' started by ahmo, Sep 29, 2016.

  1. ahmo

    ahmo Senior Member

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    Northcoast NSW, Australia
  2. taniaaust1

    taniaaust1 Senior Member

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    LOL no you especially cant like that. That's one way to get publicity. I just had to look up where that was taken, its London.
     
    Valentijn, AndyPR and Jennifer J like this.
  3. Skippa

    Skippa Anti-BS

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    Hehehe, finally the kind of advocacy I get get behind.
     
  4. Mrs Sowester

    Mrs Sowester Senior Member

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    She must have been cold.
     
    slysaint likes this.
  5. slysaint

    slysaint Senior Member

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    You should have been on hand with one of your curtains.
     
  6. Mrs Sowester

    Mrs Sowester Senior Member

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    I've had to give up on the curtains for the time being until this flare-up passes :( she could have borrowed half a roll of thermal, blackout curtain lining and finished the ensemble off nicely with a crystal beaded trim...
     
    eafw, Jennifer J, TiredSam and 2 others like this.
  7. AndyPandy

    AndyPandy Making the most of it

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  8. rebar

    rebar Senior Member

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    To win the media game you have to play it. I admire her courage!
     
    Izola, Jennifer J, mango and 2 others like this.
  9. mermaid

    mermaid Senior Member

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    The thing I puzzled over was how she managed not to topple over with the blindfold on, as if I shut my eyes and stand up, I think I would keel over.
     
    alkt, jesse's mom, Jennifer J and 4 others like this.
  10. Sidereal

    Sidereal Senior Member

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    Not everyone with ME has a positive Romberg sign. When I was severe I used to fall over if I closed my eyes while standing but not currently.
     
    alkt, Jennifer J, Kati and 1 other person like this.
  11. mermaid

    mermaid Senior Member

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    Yes, I suppose I would wobble a lot but not fall over. Doing the blindfold thing made it doubly brave I felt as it increased the vulnerability of not knowing what others were doing around you.
     
  12. Mrs Sowester

    Mrs Sowester Senior Member

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    And hold her placard up @mermaid. She has impressive determination and must be having considerable PEM for that.
    I'm not sure I'd have got the same reaction she did; I put on two stone and couldn't shave anywhere when I became housebound 6years ago and my wobbly bits haven't seen the sun in a very long time. I'd have ended up sitting in my wheelchair not knowing what to hide with my placard...
     
    Joh, Mij, Izola and 7 others like this.
  13. Sidereal

    Sidereal Senior Member

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    Impressive advocacy indeed.
     
    MEMum, Jennifer J, Thomas and 3 others like this.
  14. Roy S

    Roy S former DC ME/CFS lobbyist

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    AndyPandy, Valentijn, Izola and 6 others like this.
  15. daisybell

    daisybell Senior Member

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    Good on her indeed. I think I read that she had been told by a doctor that her ME was because she had body-image issues...
    I'm not that brave!
     
    Chelby, jesse's mom, MEMum and 3 others like this.
  16. jesse's mom

    jesse's mom Senior Member

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    she was very brave... in the US she would also be arrested. isn't that horrible?
    the land of the free my rear end
     
    nanonug likes this.
  17. nanonug

    nanonug Senior Member

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    jesse's mom likes this.
  18. jesse's mom

    jesse's mom Senior Member

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    "Police arrested John and charged him in county court with indecent exposure. In 2015, a Multnomah County, OR, judge acquitted him, saying his protest — however naked — was still a protest and thus protected by the First Amendment.

    In that judge’s eyes, public nudity violates the law only when people are engaged in sexual intercourse or if they got undressed “with the intent of arousing the sexual desire” of others."

    yes, arrested then dismissed.
    then she would have been invisible to the #millionsmissing demonstration.
    therefore missing...
     
    nanonug likes this.

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