August 8th, 2018: Understanding and Remembrance Day for Severe ME
Have you heard of our Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance? Please join Jody Smith in observing this day and honoring the 25% of those with ME/CFS who are most severely ill.
Discuss the article on the Forums.

You (and anyone else you want to invite) is invited to my virtual #MillionsMissing Day of Change.

Discussion in 'Upcoming ME/CFS Events' started by dmhshop, Apr 8, 2018.

  1. dmhshop

    dmhshop

    Messages:
    5
    Likes:
    15
    What we need is if you are:

    * a person with CFS/ME
    please consider taking a photo of yourself or your shoes with one of the posters (http://millionsmissing.meaction.net/wp-content/uploads/2018/04/18_MEAction_Poster_V2_LOWkf.pdf) or with your own sign/note (can be handwritten).

    Some ideas of things to include in your sign/note:
    – A message directed at the target of your country’s protest (in the U.S., that would be NIH director, Francis Collins);
    – Your location – #CanYouSeeMEnow in San Diego, CA;
    – Our hashtags – #CanYouSeeMEnow, #MECFS and #MillionsMissing
    * a family member or a friend of someone with CFS - hold up a note letting people know how you miss them. We miss you - we miss being with you, talking to you, being a part of the family.

    AND then post the photo on my event https://www.facebook.com/events/902263099954183/ - you don't need to go anywhere :)
     
    Last edited by a moderator: Apr 8, 2018
  2. dmhshop

    dmhshop

    Messages:
    5
    Likes:
    15
    Great news! The Open Medicine Foundation https://www.omf.ngo/ is co-sponsoring this #MillionsMissing Day of Action with me! The mission of the Open Medicine Foundation is to:

    * Invest in accelerating collaborative medical research to find effective treatments and diagnostic markers for ME/CFS and related chronic complex diseases.

    * Keep the community informed by disseminating information on current research projects and results

    * Bring together thought leaders from around the world to brainstorm and set up targeted initiatives to tackle difficult-to-treat diseases

    * Encourage and engage the patient community to take an active role in their own healthcare

    https://www.omf.ngo/donate-to-the-end-mecfs-project/
     
    jpcv and lafarfelue like this.

See more popular forum discussions.

Share This Page