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Worse or better after menopause?

Discussion in 'Hormones' started by bertie7, Mar 25, 2014.

  1. Aileen

    Aileen Senior Member

    Just a thought for those of you who are experiencing problems. The vagina has its own microbiome, Perhaps looking into probiotics specifically for "women's health" might be helpful. Not sure which ones would be best to take but might be worth looking into.
    ebethc likes this.
  2. Victronix

    Victronix Senior Member

    I've just started having my first chaotic periods (age 50) and suddenly have been flooded with symptoms (but have not yet gotten to see a gynecologist that's in another week +, so don't know yet for sure what's going on) -- the crushing fatigue, pain in the pelvis like I have a UTI but there is no infection, nausea, anxiety, sleeplessness, etc. I'm sorry to read about how difficult it has been for some on this thread! Amazing what some have endured. I'm just at the very start of this so am appreciating the knowledge . . .
  3. josephine2


    I'm replying to older thread but think this is an important topic. Everyone told me when the perimenopause migraines started that they would go away in menopause and I didn't believe them because nothing else about my health was typical. However, they did finally go away within 2 years menopause - like 100%. So I want to hold out hope for those dealing with migraines, too - if you have them. HRT didn't help one way or the other with migraines. And sinus infections being the hallmark of my ME/CFS - those got worse in menopause and am thinking it's epithelial cells and cilia health not strong in a way they were pre menopause. Any advice on that, I'd be interested in.
    rosie26 and Misfit Toy like this.
  4. rosie26

    rosie26 Senior Member

    Agree with you @josephine2 my headaches seem to have gone but right from the beginning of going through menopause, I have deteriorated ME wise - it doesn't feel good and I am not sure anymore about future improvement. It's been 3 years and I am still in this deteriorated state and haven't picked up.

    My CNS has got worse and I wish I knew how to calm it down. Also, I am getting night sweats during the day and I have never had this before. These sweats during the day are the same slick sweats you get with the night sweat. And the heat that comes with it is quite severe. I don't know what is going on - it's a new thing for me. The sweat is all over the body as well, not just the torso. Never experienced anything like it before. It feels like my body is trying to get rid of something with these sweats.
  5. ebethc

    ebethc Senior Member

    Sorry to report that perimenopause made everything dramatically worse... My CFS has always been affected by hormonal changes - even smaller ones, so menopause has been rough. The inflammation (joint pain, sinus issues) and fatigue and BRAIN FOG have been killing me... A LONG road, and very hard to work during this time... Financially devastating.

    @WoolPippi 's post really resonated w me... I just started pregnenolone this wk and it has had a dramatically positive effect on me - the single best supplement I've ever taken... I think this may be due to it's effect on progesterone creation and steroid hormones that decrease inflammation. I've read a lot about crashes after pregnenolone - and I had a bad experience w DHEA (a little better at first, then worse), so I'm extremely cautious w pregnenolone and not getting my hopes up very high until I have more time w this supplement. However, regardless of whether it works for me, I feel like I have a strong indication of which direction to go in... e.g., if progesterone/steroids are positive for me, then I can experiment w different combos...if preg doesn't pan out, I may try progesterone again ... Last time I tried it, maybe it was too much?? It made me bloated and sleepy... Maybe tiny, tiny doses of steroid hormones? I've tried these in the past... this is definitely something I would need a doctor's advice to work on, but I'm just glad to have a direction to go in after trying a million things only to rule out ~999,995 of them!! (e.g. methylation/genetic protocols, paleo/special diets, etc.. ugh.)

    Best of luck and don't give up!
    WoolPippi likes this.
  6. Mij

    Mij Senior Member

    Updating this thread. How are you doing @rosie26
    rosie26 likes this.
  7. MeSci

    MeSci ME/CFS since 1995; activity level 6?

    Cornwall, UK
    IIRC, I got worse during perimenopause, but I was going through a lot of extra stress then (living in damp, cramped temporary accommodation while my house was renovated, and finances were very worrying, also having a battle with a head of department at my uni just as I was coming up to my final exams, losing a computer and files to the damp, etc.) I put on a lot of weight, maybe because eating and drinking too much due to stress, and the extra weight was causing a lot of pain. I too avoided the horse-derived HRT for ethical reasons and instead took a soya phytoestrogen supplement.

    After settling back home and losing the excess weight my health improved again, so was similar to before menopause. So I don't know if (peri-)menopause made much or any difference.

    As for migraine, I started getting them at age 61 (last year)! :(
  8. rosie26

    rosie26 Senior Member

    Thanks for asking Mij, I will do an update on my menopause thread and I will link to it from here - sometime. I am still figuring things out - so much going on. I really think the menopause and the ME has combined and triggered my lung problems and I am querying what the doctors have told me. I think it is something different to what they have told me - time will tell and more tests.

    I am trying things to see what helps and loads more things to try eventually. Been extremely sick all winter and the warmer weather has helped pick me up some now and trying to get the house slowly all tidied up - such a tip, after not being able to do much at all for months on end. Thanks, hope your doing ok.
    Mij likes this.
  9. metalnun


    I am both sorry, and yet at the same time, reassured, to read that other women are having this problem. At least we are in good company. I was beginning to wonder if there may be some terrible new condition affecting me. I haven't been on this forum for a while, and just came back today upon googling "CFS/ME worse after menopause."

    I am 54, was diagnosed with CFIDS in 1992, 26 years ago. As described in previous posts and blog, my disease went almost completely into remission thanks to holistic and herbal medicine, especially after I discontinued mainstream treatments (antibiotics for the frequent infections). Over the years I've had my ups and downs, e.g. had a severe flareup after exposure to Black Mold, good days and bad days, but up until recently I was quite strong, even ripped, and on a good day, in better shape than most "normal" people my age.

    A couple of years ago I became perimenopausal with weight gain, abdominal bloating, very heavy periods with clots and anemia (suspicion of fibroids), irritability, anxiety, hot flashes and insomnia. About a year ago I began using NOW bioidentical progesterone cream, which helped a lot although the insomnia was bad. I could fall asleep pretty easily, but would wake up 3-4 hours later and not be able to get back to sleep! It was maddening. I need at least 9-10 hours to keep my immunity strong.

    I was so exhausted I could barely work (my SSDI was denied back in the 1990s on the basis that, "In Florida you're not Disabled if you can still talk on the phone," which is my current first job, working as a Spiritual Advisor for a Famous Psychic Company whose name cannot be revealed on social media for contractual reasons. I have recently acquired a second job as a writer in order to pay the bills). I began using CBD, which really helped with the insomnia, although ultimately I have found that medical MJ, in the form of cannabutter, works better than anything else.

    Well, my LMP was 234 days ago, hurray! It's so nice not to be losing blood. Also, ever since my period stopped, the extra pounds I'd been carrying around the last few years melted away effortlessly. Almost too easily, but hey, I'm not complaining! It's wonderful to be thin again. I felt like I was walking around in a fat lady's body. Only problem is, the weight loss has been accompanied by 2 other phenomena: loss of muscle mass and frequent bowel movements - food just goes right through me. In retrospect, I had this symptom when first diagnosed.

    In addition, the fibromyalgia-like pain has gotten much worse, like it was in the beginning. Fortunately the medical MJ helps considerably, but I can only take it before bed, not while I am at work. Also I feel weak, trembly and light-headed like I did back then. Everything is difficult just like it was at first. Taking a shower is strenuous.

    Another peculiar thing, I've been battling a Demodex infestation of the face and scalp. Self-diagnosed via observation of life cycle pattern, resistance to usual acne meds (I have never had acne), moderate response to tea tree oil and topical diatomaceous earth, and impressive immediate resolution with ivermectin. In retrospect, I also had this when first diagnosed, but at that time my doctor had referred to the painful red lesions as "viral exanthema," probably coxsackie, in his opinion (which was his favorite theory re: CFIDS). I've taken the first 2 doses per a research protocol I read about and it has cleared up 95% but I've lost so much hair I am nearly bald on the top of my scalp.

    Anyway - when I was first diagnosed with CFIDS, before I lost my job due to using up all my sick days, I was struggling to walk up the stairs and heard coworkers whisper, "Wow, Jamie looks like an old lady!" Now I've become that old lady. I am supposed to start my new writing job, in addition to the phone counseling, tomorrow. I hope I will be able to do it. My house is filthy. I was planning to clean the floor tonight but after pulling up weeds, working on my organic veggie garden and wrestling my horses to do their hooves yesterday and today (my days "off"), I am completely exhausted.

    So yeah, ladies, if your CFS/ME has gotten worse since beginning menopause, you're not alone. Join the club.
    Last edited: Mar 5, 2018
    rosie26 likes this.

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