catly
Senior Member
- Messages
- 284
- Location
- outside of NYC
One of the biggest reasons to voice your concern over the P2P initiative is stated on the first page of the draft AHRQ document, it states that "The final report (not draft) may be used, in whole or in part, as a basis for the development of clinical practice guidelines and other quality enhancement tools, or as a basis for reimbursement and coverage policies." For more on the draft AHRQ report please see this thread.
So what does this mean? Well as someone who has worked in healthcare and the insurance industry for 25 years, it means that if you think health care coverage for ME in the US is bad now, get ready for it to become much worse as the insurance companies and Medicare/Medicaid get hold of this and refuse to cover anything other than CBT/GET. And I'm sure this will spill over into the disability insurance industry as well.
So whether or not you decide "participating" in the upcoming P2P meeting is the right thing to do, I want to second @caledonia information above...please speak up, either way! And consider joining in on the twitterstorms that many PWME have been doing on Saturdays at 7 pm. or anytime you feel like it.
Twitter is an easy way to particpate in advocacy. It is easy to create a twitter account and to compose tweets.
The existing twitterstorms are targeting the following individuals:
NIH director Francis S. Collins @NIHDirector
Director of NIH Office of Women's health Janine Clayton @JanineClaytonMD
HHS Secretary of Health Sylvia Burwell @SecBurwell
You can also tweet your congressman and anyone else you think is important.
Use the hastag #StopP2P4ME if you decide to join so the hastag can be trended. I think we can actually recover all the tweets to that hastag, so theoretically, we can produce a record of all of those tweets.
So what does this mean? Well as someone who has worked in healthcare and the insurance industry for 25 years, it means that if you think health care coverage for ME in the US is bad now, get ready for it to become much worse as the insurance companies and Medicare/Medicaid get hold of this and refuse to cover anything other than CBT/GET. And I'm sure this will spill over into the disability insurance industry as well.
So whether or not you decide "participating" in the upcoming P2P meeting is the right thing to do, I want to second @caledonia information above...please speak up, either way! And consider joining in on the twitterstorms that many PWME have been doing on Saturdays at 7 pm. or anytime you feel like it.
Twitter is an easy way to particpate in advocacy. It is easy to create a twitter account and to compose tweets.
The existing twitterstorms are targeting the following individuals:
NIH director Francis S. Collins @NIHDirector
Director of NIH Office of Women's health Janine Clayton @JanineClaytonMD
HHS Secretary of Health Sylvia Burwell @SecBurwell
You can also tweet your congressman and anyone else you think is important.
Use the hastag #StopP2P4ME if you decide to join so the hastag can be trended. I think we can actually recover all the tweets to that hastag, so theoretically, we can produce a record of all of those tweets.