I understand everyone is different, but all I see on here are people experimenting with treatment plans to move on to the next one. I hear several CFS/ME/FM specialists mentioned and recommended, but don't hear of any success stories coming out of them. I can't read every post, so I probably missed a few, but it would be cool if this thread could kick off success stories.
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- Thread starter Bradford
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Sushi
Moderation Resource Albuquerque
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Bradford
You'll find quite a few progress stories, a few remission stories, but indeed they are scattered among many threads. What works for one may not work for others. Some of us do the "steady-on" approach with protocols that work for us and some use the scattershot approach hoping to hit a good target.
My guess would be that some will reply on this thread but other's who have made progress won't feel like (have the energy and time
) to repeat themselves. Each discussion is pretty complex and will usually be found on threads on the topic/protocol being discussed.
Many here read using "What's new" and in that way catch up on different people's progress as they talk about their treatments on different threads. As you read you'll get to recognize those who have found something that works for them. Some of us are seeing doctors we trust and following what they prescribe (and that varies a lot) and some are relying on forums to look for things that help them.
Best wishes,
Sushi
You'll find quite a few progress stories, a few remission stories, but indeed they are scattered among many threads. What works for one may not work for others. Some of us do the "steady-on" approach with protocols that work for us and some use the scattershot approach hoping to hit a good target.
My guess would be that some will reply on this thread but other's who have made progress won't feel like (have the energy and time
) to repeat themselves. Each discussion is pretty complex and will usually be found on threads on the topic/protocol being discussed.Many here read using "What's new" and in that way catch up on different people's progress as they talk about their treatments on different threads. As you read you'll get to recognize those who have found something that works for them. Some of us are seeing doctors we trust and following what they prescribe (and that varies a lot) and some are relying on forums to look for things that help them.
Best wishes,
Sushi
Sushi
Moderation Resource Albuquerque
- Messages
- 19,935
- Location
- Albuquerque
If you click on forums and scroll down to the google site search you will find other threads on successes.
Sushi
There tend to be 4 types of success stories.
The first group are from people who rarely post here and one day a post arrives to say that they have done treatment X and they are now recovered. The stories are written in exactly the same way, they say how they didn't originally believe that treatment X would work but all their friends were trying it and being cured, and they managed to somehow get themselves out of the bed they have been in for the past 10 years, to a 3 day course and now are 100% recovered.
The second group of success stories come from people who have struggled with a particular regime or protocol but over time hit on just the right thing and it made an incredible difference and slowly or quickly they got better
The third success story is from people who have been misdiagnosed and now after seeing a new doctor now know what was their real problem.
The last group would be trying a number of different things. They did a bit of this, and a bit of that, years later they find themselves improving.
I personally wouldn't be interested in a "Success Category" as I like to get to know people over time and follow their journey. There would be the usual long discussions over treatments that cured one person and made another worse. I'm not sure what someone who doesn't spend time on this forum would get from it. Each success journey would be too different maybe or it would end up with one success and then replies of failures for the same thing?
The first group are from people who rarely post here and one day a post arrives to say that they have done treatment X and they are now recovered. The stories are written in exactly the same way, they say how they didn't originally believe that treatment X would work but all their friends were trying it and being cured, and they managed to somehow get themselves out of the bed they have been in for the past 10 years, to a 3 day course and now are 100% recovered.
The second group of success stories come from people who have struggled with a particular regime or protocol but over time hit on just the right thing and it made an incredible difference and slowly or quickly they got better
The third success story is from people who have been misdiagnosed and now after seeing a new doctor now know what was their real problem.
The last group would be trying a number of different things. They did a bit of this, and a bit of that, years later they find themselves improving.
I personally wouldn't be interested in a "Success Category" as I like to get to know people over time and follow their journey. There would be the usual long discussions over treatments that cured one person and made another worse. I'm not sure what someone who doesn't spend time on this forum would get from it. Each success journey would be too different maybe or it would end up with one success and then replies of failures for the same thing?