The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
Discuss the article on the Forums.

What Will Happen To M.E.?

Discussion in 'General ME/CFS Discussion' started by Karenironside, Apr 3, 2014.

  1. I write a blog inspired by my experiences of ME.

    Today's blog: Serious Potholes in the Road

    My road towards acceptance of my illness.


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  2. taniaaust1

    taniaaust1 Senior Member

    Sth Australia
    I like your blog, its well written.
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  3. barbc56

    barbc56 Senior Member

    Welcome to the forum, @Karenironside

    I really liked your blog and look forward to reading more in the future.

    I have always preferred saying coming to terms instead of acceptance. There are some things I will never accept in life but coming to terms with it just seems more proactive as well as productive. It's only a semantic difference but nevertheless for me, the two terms mean something different.

    Again, welcome.

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  4. Misfit Toy

    Misfit Toy Senior Member

    Welcome, Karen. I am glad you got out and were able to make that meal! Hurray! I also like the phrase, coming to terms instead of acceptance. I will never completely accept it. I try to manage with it. There are plenty of pot holes, stop signs and dead end streets on this journey. A huge thank you to those green lights we get here and there
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  5. justy

    justy Donate Advocate Demonstrate

    Great Blog.
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  6. GracieJ

    GracieJ Senior Member

    So sorry you may be facing this. All too common.

    Your charting of symptoms blows my mind. I have never been able to track anything from onset, so your ability to stay focused is admirable. I hope for you it continues.

    Any ideas yet on what direction you may head? This is a tough one. For me, trying to choose a different line of work eventually had to be abandoned. There was no way I could do the studying and support myself at the same time, and then it was obvious I could not handle the load of any new training at all, even if by some miracle my living expenses were covered.
  7. Unfortunately I haven't a clue! This is part of the coming to terms process. I still really hope I can return to teaching but I must be realistic!!

    Thanks for your support.
  8. heapsreal

    heapsreal iherb 10% discount code OPA989,

    australia (brisbane)
    I changed jobs, took leave without pay to try other things as I thought it was my job making me so miserable. But learning something new was hard and also they don't expect the new guy to have too many sickies? I went back to my original job and changed a few things, reduced my hours and was able to get out of night shifts, made a big difference. After finding some good treatments I'm functioning better and mostly enjoying work I guess. I could always live the life of a multi millionaire ???

    Good luck with finding something that suits well.
  9. minkeygirl

    minkeygirl But I Look So Good.

    Left Coast
    One of the hardest things was not being able to work. I was too sick in the beginning and then I was not able to go back. My work defined me. It was a place to go where I knew what I was doing and who I was. It was my social life.

    Not having that was huge and a blow to my self esteem. I'd love to be able to just sit in a file room and do something, have something that was mine, but I doubt that's going to happen.

    I'm envious of those who can still work. Hope you can figure it out.
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  10. Thank you for all your words of support. Minkeygirl you have described my feelings perfectly.

    I have always said though that with every cloud there is a silver lining it just takes too damn long sometimes to spot it!
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  15. Today's blog: Guilt Huh Yeah! What Is It Good For? ... Absolutely Nothing!

    A patient's sense of all pervading guilt about being a burden.
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  17. justy

    justy Donate Advocate Demonstrate

    Thanks Karen, I very much enjoy your blog, and often find a lot that resonates.

    All the best,

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