Julie Rehmeyer's 'Through the Shadowlands'
Writer Never Give Up talks about Julie Rehmeyer's new book "Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand" and shares an interview with Julie ...
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What to AVOID taking if you have Lyme

Discussion in 'Lyme Disease and Co-Infections' started by hogwild, Aug 27, 2011.

  1. hogwild


    HI everyone:

    I have no idea where to post this, as I'm not sure it fits into any category.

    I saw Kenny De Meirleir about 6 months ago He ran the whole gamut of tests,
    and I was diagnosed with gut and immune issues, in particular.

    I had also recently acquired some sort of (probably urinary) infection. I don't
    think that ever left yet either.

    At the time, he prescribed:

    Nexavir (partly because my sleep is a disaster)
    Ornidazole (for the infection and/or gut dysbiosis)
    probiotics with FOS
    injectable Hydroxycobalamin B12

    I never did start the whole protocol-just the B12 injections.

    I was stable for quite a while after seeing Dr. De Meirleir, but last few
    months am much worse. I was pushed hard by doctors here to test
    for Lyme. So I'm testing for Lyme.

    Some doctors have warned me to be VERY careful in not taking
    certain things, as they could make Lyme "irreversibly worse". (their words).
    On example I was told about was taking the wrong antibiotic. I was told
    the wrong one could fight one infection but possibly make another worse,
    and that's IF it worked properly.

    Can anyone point me as to what types of things I should avoid if
    I find out Lyme is part of the picture? For example, recently, I'm taking
    GABA to help with sleep. The more I take, the better I sleep. But I swear
    it makes other symptoms worse during the day.

    Thanks for any guidance on this.


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