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- 16
I don't know what to do at this point. I had the HEPATITIS B vaccine three months ago and had all sorts of symptoms since then that were relatively manageable... I could work at 50% and come home and rest and that was it.
I've been to the rheumatologist, who referred me to the immunologist, who referred me to the neurologist, who referred me BACK to the rheumatologist (!!). My GP has been of no help, thinking my symptoms were from anxiety since the onset. I see another internist tomorrow -- which will most likely produce nothing.
Since Sunday, I have started to feel "flu-ey" with new GI symptoms (stomach cramp and aches), some dry skin, and worsening depersonalization. I've gotten worse and worse since Sunday, and now I feel like absolute death. I feel AWFUL... to the point where I've finally called all of my closest friends over the years to tell them everything I'm going through and that anything is possible at this point and to keep me in their thoughts. My parents are driving in tomorrow to stay with me for the week -- I was bawling my eyes out facetiming them. I've decided that I will most likely withdraw from my residency that I worked so hard to get through.
I believe I may have macrophagic myofasciitis, as awfully hard as that pill is to swallow. I remember hearing max08 talk about it. The odd thing is, my brother had a negative reaction to the FLU VACCINE three years ago and missed 9 months of school. He has told me that my constellation of symptoms resemble his and he had some sort of auto-immune reaction/POTS/dysautonomia/small fiber neuropathy and maybe MCAS?. He was treated with plasmapheresis and scig among other treatments. I want to believe that that is what is going on with me, however, I can't help but think MMF seems more likely (and untreatable). The Hep B vaccine is a bigger bitch than the flu vaccine. I think the worst in these situations. Could these all be autonomic related? I will say my heart rate jumps from 70 laying down to 100+ while standing for several min.
I don't know why I posted this... I feel lost. If anyone has any advice or ANYONE that they can direct me to (maybe with personal post-vaccine experience OR an expert), I would greatly appreciate it. I feel awful... I need help. I don't know if I'll get through this.
Maybe I coincidentally just have the stomach flu but I highly doubt that.
My Initial Post - http://forums.phoenixrising.me/index.php?threads/post-vaccine-onset-help-please.57516/#post-953853
I've been to the rheumatologist, who referred me to the immunologist, who referred me to the neurologist, who referred me BACK to the rheumatologist (!!). My GP has been of no help, thinking my symptoms were from anxiety since the onset. I see another internist tomorrow -- which will most likely produce nothing.
Since Sunday, I have started to feel "flu-ey" with new GI symptoms (stomach cramp and aches), some dry skin, and worsening depersonalization. I've gotten worse and worse since Sunday, and now I feel like absolute death. I feel AWFUL... to the point where I've finally called all of my closest friends over the years to tell them everything I'm going through and that anything is possible at this point and to keep me in their thoughts. My parents are driving in tomorrow to stay with me for the week -- I was bawling my eyes out facetiming them. I've decided that I will most likely withdraw from my residency that I worked so hard to get through.
I believe I may have macrophagic myofasciitis, as awfully hard as that pill is to swallow. I remember hearing max08 talk about it. The odd thing is, my brother had a negative reaction to the FLU VACCINE three years ago and missed 9 months of school. He has told me that my constellation of symptoms resemble his and he had some sort of auto-immune reaction/POTS/dysautonomia/small fiber neuropathy and maybe MCAS?. He was treated with plasmapheresis and scig among other treatments. I want to believe that that is what is going on with me, however, I can't help but think MMF seems more likely (and untreatable). The Hep B vaccine is a bigger bitch than the flu vaccine. I think the worst in these situations. Could these all be autonomic related? I will say my heart rate jumps from 70 laying down to 100+ while standing for several min.
I don't know why I posted this... I feel lost. If anyone has any advice or ANYONE that they can direct me to (maybe with personal post-vaccine experience OR an expert), I would greatly appreciate it. I feel awful... I need help. I don't know if I'll get through this.
Maybe I coincidentally just have the stomach flu but I highly doubt that.
My Initial Post - http://forums.phoenixrising.me/index.php?threads/post-vaccine-onset-help-please.57516/#post-953853
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