Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
Discuss the article on the Forums.

What NOT to say to someone with ME/CFS - from the BBC

Discussion in 'General ME/CFS Discussion' started by charles shepherd, Jan 26, 2016.

  1. charles shepherd

    charles shepherd Senior Member

    Messages:
    2,239
    Likes:
    16,214
  2. sarah darwins

    sarah darwins I told you I was ill

    Messages:
    2,478
    Likes:
    10,521
    Cornwall, UK
    That's actually pretty good! But then, Newsbeat and Newsround have been the BBC's best news output for years, much better than the "grown-up" news.

    I guess the contributors are too young to have heard much of our old favourite "ME? Yeah, I had that."
     
    justy, Woolie, Sasha and 1 other person like this.
  3. Sidereal

    Sidereal Senior Member

    Messages:
    3,099
    Likes:
    17,227
    Not bad.
     
    snowathlete likes this.
  4. MeSci

    MeSci ME/CFS since 1995; activity level 6?

    Messages:
    7,999
    Likes:
    12,925
    Cornwall, UK
    They forgot "But you look so well!".
     
  5. worldbackwards

    worldbackwards Senior Member

    Messages:
    2,051
    Likes:
    10,246
    Felicity Morse, social media editor at Newsbeat is a former ME patient. Had some choice words to say about the PACE Telegraph coverage as I recall. Perhaps she was involved, be surprising if she wasn't.
     
    justy, Woolie, Roy S and 6 others like this.
  6. sarah darwins

    sarah darwins I told you I was ill

    Messages:
    2,478
    Likes:
    10,521
    Cornwall, UK
    That's interesting.
     
    snowathlete likes this.
  7. worldbackwards

    worldbackwards Senior Member

    Messages:
    2,051
    Likes:
    10,246
  8. Mary

    Mary Forum Support Assistant

    Messages:
    3,729
    Likes:
    8,293
    Southern California
    I especially liked the comments made by the young people who had CFS/ME - this in particular hit me:
    I can't imagine being that young and that sick. Full-blown CFS/ME didn't hit me until age 47 (after a slow steady decline of some 12 years)
     
    Woolie, jimells and sarah darwins like this.
  9. Marco

    Marco Grrrrrrr!

    Messages:
    2,380
    Likes:
    3,200
    Near Cognac, France
    Fair enough and I know it's aimed at youngsters but what about us 6 foot 121/2 stone males who've had it for 30 years?
     
    justy likes this.
  10. jimells

    jimells Senior Member

    Messages:
    2,009
    Likes:
    6,154
    northern Maine
    We are Useless Eaters...
     
  11. taniaaust1

    taniaaust1 Senior Member

    Messages:
    12,033
    Likes:
    13,098
    Sth Australia
    good article .. and its great to see an article focused on the younger ones with this, those who should be in their prime. Helps with the misconception still out there that one has to be older to get this.
     
  12. Snow Leopard

    Snow Leopard Hibernating

    Messages:
    4,650
    Likes:
    12,553
    South Australia
    Least offensive media article I've read all week!
     
    Valentijn, mango, MeSci and 1 other person like this.

See more popular forum discussions.

Share This Page