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Hi, everyone, I've had bad NMH for 1.5 years, which has greatly compounded my M.E.--gone from having M.E. symptoms but able to work to pretty much housebound.
I was put on Florinef over a year ago, which didn't help much, then Midodrine last summer, which helped somewhat--I can stay upright longer now. Still really fatigued/lightheaded/needing to be horizontal a lot though.
The Florinef did normalize my BP, so my not-so-helpful cardio wasn't all that interested in my symptoms. (had to really push to get Midodrine from him). Seeing him again tomorrow and wondering what else has helped for you--I don't have POTS (my heart rate is pretty consistent lying down/sitting/standing so I shouldn't have beta blockers, et.
Thanks!
I was put on Florinef over a year ago, which didn't help much, then Midodrine last summer, which helped somewhat--I can stay upright longer now. Still really fatigued/lightheaded/needing to be horizontal a lot though.
The Florinef did normalize my BP, so my not-so-helpful cardio wasn't all that interested in my symptoms. (had to really push to get Midodrine from him). Seeing him again tomorrow and wondering what else has helped for you--I don't have POTS (my heart rate is pretty consistent lying down/sitting/standing so I shouldn't have beta blockers, et.
Thanks!