What is current Immunovir Dosing?

[minkeygirl]

Can anyone tell me the current Immuovir dosing? It had been working up to 6 pills a day then weekends off.

Then I remember @lnester7 saying Dr. Rey had changed it to two tablets and day with no breaks.

Does that still hold? What about "tolerance"

I'm tossing around adding it to my Valcyte.

 

[Seven7]

Mine is 3 tablets a day (I have a particular problem where I get too acidic, and all my soft tissue openings splits open, yes all of them ). Dr Klimas in this visit did ask me to break every 6 months. So would be nice to hear from other patients and see what the current consensus is, pause or not to pause?

 

[minkeygirl]

Ouch! Yah I'd like to know about pausing or not. I know @heapsreal seemed to feel he needed the break.

Does she still feel Inosine is a good cheaper alternative? 3 a day is about $90/month

 

[redaxe]

I'd go easy on this stuff - I tried it at the Cheney dose (alternating between 2-6 pills a day). The 6 a day made me feel like a had a huge flu-like hangover - not a nice sensation.
Part of the problem is we don't know enough about the immune system abnormalities. Some of us may well have autoimmunity - judging by the rituximab trials, Isoprinosine might elevate this immune response.

 

[Carola]

I alternate weeks of 2 tablets/day and 3 tablets/day, with weekends off, a schedule I've been on for a couple of years. Looking ahead, the plan is to consider maintaining that routine but on a schedule of 3 months on, 3 months off.