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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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What you think is a weird flu might not be a viral infection at all. It could be the t-cells reacting the same way to some other trigger.
I did better on IV antibiotics.I'm chocked by how many on this forum that has gotten either sick or worse on antibiotics.
That's reality, if you bother to learn anything about Lyme. The borrelia bacteria is a spirochete, and spirochetes release endotoxins when they die off. This triggers an immune reaction involving fever, hypotension, etc, and is extremely well documented in the treatment of syphilis, which is also caused be a spirochete.I heard some doctors even encourage their patients to accept getting worse, and that it's a sign of the treatment working. That is scary!
That's reality, if you bother to learn anything about Lyme. The borrelia bacteria is a spirochete, and spirochetes release endotoxins when they die off. This triggers an immune reaction involving fever, hypotension, etc, and is extremely well documented in the treatment of syphilis, which is also caused be a spirochete.
Umm, if they weren´t already permanently ill, why would they get treatment?
My ME was brought on by Yersinia Enterocolitica - I had the tell-tale symptoms and was still IgA positive for it (and no other pathogens associated with ME) this year.
A person infected with borrelia will very likely experience a herxheimer reaction when the correct antibiotic is taken, that's a sign that the treatment is working.
The problem is that certain antibiotics are very toxic to the mitochondria, sometimes the toxicity feels like a herxheimer reaction while it isn't. I have been misdiagnosed with lyme disease and wrongly told for three years that my worsening was all due to "herxing". I complained that i felt toxic, like the antibiotics were damaging me but the doc. didn't listen. I have spoken with quite a few people who have all been misdiagnosed with lyme disease and damaged by antibiotics, some more than others. My feeling is that 50% or more of the current patientgroup has been misdiagnosed.
I tried another antibiotic for the gut like 2 months ago and again i felt so toxic. Now that i'm off it for two months i'm starting to feel better physically, i have more energy and i don't feel like i'm dying any longer.
Unreliable testing methods, in both ways. MIsdiagnosis as false positive and false negative.Why do you think misdiagnoses are so common?
But permanent worse from treatment. There is a difference.
Well, you didn´t say that. And that is a risk with any treatment for any condition. To prove your point you would need stats, which I see a definite lack of. Otherwise I could just give examples of other treatments (such as Rituximab) that people on this forum have reported to have worsened their condition.
Anyway, I think you (and then the rest of us) have derailed this thread enough for now, so how about we get back to talking about triggers, not treatments?