Many thanks, doc, for giving such a frank account of your own experience. Like you I'm vaguely hopeful that the IOM report and the change of name to SEID will lead to greater enlightenment. SEID may not be the best imaginable choice, but it's arguably better than CFS, and I respect the IOM's reasons for choosing the new name. Before I got it myself, I too was sceptical about the status of ME/CFS - a result of the combined effects of irresponsible press coverage of some of the dubious science surrounding the disease and my almost complete lack of personal acquaintance with sufferers. I have become wiser of course, though not without becoming a little sadder.