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I have yet to get a diagnosis but I am feeling like I have CFS. I am wondering what all I should bring to my doctor as far as history and symptoms to suggest this as a possibility. I will finally have health insurance next year so I can pursue this. I will list my symptoms as they have added up over the years to see if others agree with my assumption of CFS and which symptoms are related. I’ll try to make it as concise as possible.
Infant: spinal meningitis
Age 4: Lyme disease: tick was the size of a ladybug when pulled off the back of my neck, got bullseye rash, swollen achy joints, high fever.
Childhood: terrible digestion with frequent stomach aches, constipation, and diarrhea. Mostly solved with daily probiotics as adult.
Frequent illnesses like sinus infections, laryngitis, flu.
Teens: fatigue began with needing to nap often and always feeling tired.
Terrible periods, now know that’s endometrial hyperplasia which will be treated next year.
Often have tender armpits that sometimes swell.
Frequent Charlie horses and foot cramps.
Adulthood: depression, mood swings.
Have had three pregnancies all delivered via c section.
Tenosynovitis in both wrists, daily collagen helps.
Numbness/tingling in mostly left arm, sometimes right and legs very occasionally.
Taking a while to fall asleep, waking in the middle of the night.
Forgetfulness like forgetting why I enter a room or if I applied deodorant, etc. Losing a
sentence as soon as I start to say it, forgetting words and having to pause to finish a sentence.
Days where I have fever symptoms with no elevated temperature.
Sometimes dizzy when I stand up too fast.
Sometimes have a sharp chest pain that makes it difficult to breathe in without pain. Goes away within a minute.
Tests I’ve had done within the last year: CBC fine. Metabolic panel fine. Vitamin D was low now fine. Antinuclear antibodies negative. Thyroid fine. MRI of brain and of spine both clear. Neurologist exam fine.
What else should I ask to have done to get a clear diagnosis? Thank you for reading all this.
Infant: spinal meningitis
Age 4: Lyme disease: tick was the size of a ladybug when pulled off the back of my neck, got bullseye rash, swollen achy joints, high fever.
Childhood: terrible digestion with frequent stomach aches, constipation, and diarrhea. Mostly solved with daily probiotics as adult.
Frequent illnesses like sinus infections, laryngitis, flu.
Teens: fatigue began with needing to nap often and always feeling tired.
Terrible periods, now know that’s endometrial hyperplasia which will be treated next year.
Often have tender armpits that sometimes swell.
Frequent Charlie horses and foot cramps.
Adulthood: depression, mood swings.
Have had three pregnancies all delivered via c section.
Tenosynovitis in both wrists, daily collagen helps.
Numbness/tingling in mostly left arm, sometimes right and legs very occasionally.
Taking a while to fall asleep, waking in the middle of the night.
Forgetfulness like forgetting why I enter a room or if I applied deodorant, etc. Losing a
sentence as soon as I start to say it, forgetting words and having to pause to finish a sentence.
Days where I have fever symptoms with no elevated temperature.
Sometimes dizzy when I stand up too fast.
Sometimes have a sharp chest pain that makes it difficult to breathe in without pain. Goes away within a minute.
Tests I’ve had done within the last year: CBC fine. Metabolic panel fine. Vitamin D was low now fine. Antinuclear antibodies negative. Thyroid fine. MRI of brain and of spine both clear. Neurologist exam fine.
What else should I ask to have done to get a clear diagnosis? Thank you for reading all this.
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