I am 37 and live with my 75-year-old mother, who is also ill but notorious for refusing to see doctors. My cognition is now signficantly worse than hers and is deteriorating each week. 1. I have been on at least 75mg/day of pregabalin for the last four years. The (NHS) doctor and my mother think the inability to think and remember might be the fault of the pregabalin so we're reducing it. Have noticed no effects from that so far other than weight loss and blinding headache,, 2. The doctor suggested referring me to a memory clinic, then had second thoughts and said I didn't appear to be quite demented enough yet. She offered me a CT scan, then became worried, saying that CT scans can *cause* brain tumours via radiation. Any advice? 3. I asked the support worker person (from a care association) if social care is available for people with dementia in my part of the country (west Cumbria). She explained that nobody gets social care for dementia here, not even if they have Alzheimer's. I assume my mother is supposed to look after me until we both get put in care homes - is that right? My mother would be a fairly terrible carer as physical activity wears her out and she hates taking people to the doctor. We currently have a paid cleaner who comes in once a week and changes the beds as well. 4. I just got the PIP decision back from Atos. I'm still on the same rate despite my deteriorating condition; the comments are the usual random gibberish with no relation to what I actually can and can't do. I have been filling in the benefits application forms for the last 15yrs but I doubt I will be well enough to do it from now on. My mother will probably be bad at it as she always says I am about 3x as capable as I actually am! But first things first; should I wait until I have a diagnosis of dementia, then reapply? What if it takes a really long time to get the diagnosis? 5. I'm intestate. (My mother also hates going to lawyers.) I need to make a will and presumably give lasting power of attorney to my mother. What should I put in the living will, though? I'm worried there are all sorts of ME-related issues that I should specify, and neither the lawyer nor the doctor will know anything about them. I know there is other stuff I should be thinking about but I can't remember it. I've taken some books about dementia out of the library but I worry that they will miss out more important ME-related things.