what country do you live in poll

[Googsta]

Markmc said

Don't know about India, but probably the level of poverty is so high they can't even get a diagnosis or afford to surf the web if they have CFS.

There is at least one member who resides in India, he had acess to medical care but very little is known about ME/CFS so he was treated rather badly .

 

[taniaaust1]

wow.. by this according to population.. it looks like Australia has twice as much ME/CFS then the UK. Interesting as doctors are so relunctant to give a CFS diagnoses here and we've never had CFS clinics.

Hard to say thou by just a poll like this .. better to compare proper population studies. Maybe more of us have computers or something?

 

[Graham]

If country was a compulsory field in our profiles it would be possible for the forum staff to generate data instead of this poll which is only as accurate as the people who decide to actually participate. Interestingly enough, some of the other fields could be quite interesting graphed as well. Such as activity level, sex, age.

I can't remember filling in anything about my sexual activity level for ages

Where do I add my entry to this poll?

 

[SOC]

wow.. by this according to population.. it looks like Australia has twice as much ME/CFS then the UK. Interesting as doctors are so relunctant to give a CFS diagnoses here and we've never had CFS clinics.

That's not a really good conclusion based on this data. We have no idea why there are more people at PR from Australia than the UK (or more answering this poll). It may have to do with awareness of this site, availability of local support groups, more discouragement in one country or the other, or any of many other possibilities. It's quite a stretch to suggest that the membership of PR is a representative sample of all ME/CFS patients in each country, and thereby judge the relative proportion of PWME in different countries.

 

[heapsreal]

That's not a really good conclusion based on this data. We have no idea why there are more people at PR from Australia than the UK (or more answering this poll). It may have to do with awareness of this site, availability of local support groups, more discouragement in one country or the other, or any of many other possibilities. It's quite a stretch to suggest that the membership of PR is a representative sample of all ME/CFS patients in each country, and thereby judge the relative proportion of PWME in different countries.

it might be a more popular site to aussies as there isnt alot of support groups. probably more computers per person maybe. i know many people have more then 1 mobil phone, so alot of aussies are into electronic gadgets etc. maybe the britts are to buggered to get online from all the graded exercise and SW is slowly killing them off with cbt/get??
Another point is that there arent many cfs gurus in australia compared to the USA, so we are on here pinching all the info we can get, some of our docs maybe abit more open to trying new things then brit docs, but not by alot. i think if i was in the uk, i dont think i would be bothered asking a doc for similar treatments seen on here, too hard. you britts need to committ a crime so you can get sent over here as convicts maybe, lol.

cheers!!!

 

[WillowJ]

Another point is that there arent many cfs gurus in australia compared to the USA, so we are on here pinching all the info we can get, some of our docs maybe abit more open to trying new things then brit docs, but not by alot.

most people in the USA don't actually have access to the specialists, either. Location, expense, or both, are a problem. I do realize that traveling several states is less far than a large ocean and several states, but at a certain point of disability, all points past a short drive (or all points out of one's house or one's bed) are equally unreachable.

Having a few specialists is good (though the number is certainly inadequate for the population!), but we really need a huge education program to teach all of our doctors in all of our countries some things about how to assess and care for us. And to be added to the med school curricula and the Merck Manual. Correctly. And thoroughly.

you britts need to committ a crime so you can get sent over here as convicts maybe, lol.

lol!

 

[taniaaust1]

. maybe the britts are to buggered to get online from all the graded exercise and SW is slowly killing them off with cbt/get??

lol.. gee my humour is very dark. Maybe so heapsreal.. Wessely's keeping the ME population down in England hence more aussies here. (no one take offenseI laugh at stuff I should get upset with.. better to find humour then cry)

Another point is that there arent many cfs gurus in australia compared to the USA,

That is a very good point and could be true when it comes to comparing the aussie with the USA figure. It thou shouldnt be a reason for UK and Australian comparison, the UK is in the same boat with lack of ME experts as we are. (one expert for a 3 times bigger population then ours)

We have no idea why there are more people at PR from Australia than the UK (or more answering this poll). It may have to do with awareness of this site

I dont think would be a factor as none of our Aussie support groups advertise PR and it doesnt get any special mention at any of the Aussie ME/CFS sites.

Maybe Aussies like polls better?? So more did this poll?

it might be a more popular site to aussies as there isnt alot of support groups

Is there more support groups in UK? I didnt think there was much there either.

or maybe the pathetic English system has many of the ME people locked up in mental hospitals or scared to be expressing themselves online about their illness?

so we are on here pinching all the info we can get, some of our docs maybe abit more open to trying new things then brit docs,

yeah that could be true.. most of us in Australia use the info here on PR to take to our doctors. I'd believe that could be harder in the UK so maybe people there feel more hopeless in investigating the possibilities?

The most likely reason I think could more aussies households have computers then UK people.. where could i find some states on that to find out if that is the case or not?

Im so curious about why such huge ME/CFS per population differences (esp since in England CFS is more easily diagnosed too.. Wessely over there I believe has made it more well known then it is here in Australia.. with all his crap stuff over the years in the UK media).