• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Well written Washington Post article on personal experience with Lyme & Lyme doctors

Valentijn

Senior Member
Messages
15,786
Hah, I like the phrase she uses to encompass Lyme and/or co-infections: "tick-sick" :D

But she makes a good point, regarding the uselessness of adhering to rather conservative IDSA standards, and the opposite extreme of following a rigid and harsher protocol which is too much for some people.

Though I think the one major mistake she made was working full time when she was too ill for it. Medical leave is for sick people, and they should at least attempt to make use of it :p