Hope123
Senior Member
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The US federal CFS Advisory Committee (CFSAC) videos are now up on the government's Youtube channel. Please watch at least one, a few, or all of it at your own pace. More views = more public interest from the government's point of view.
Of special interest might be the talk by the Social Security representative, FDA, and the "Path Forward" "Finalize Recommendations" portions. The latter two concern case definitions for ME/CFS. Public testimony sections are always riveting.
Here are the recommendations coming out of CFSAC transcribed by volunteers. The final form is not yet up.
Welcome & Opening Remarks (CFSAC Fall 2012)
Biomarkers - An Overview & Future Look (CFSAC Fall 2012)
Public Comment on Day One - AM (CFSAC Fall 2012)
Agency Updates from HRSA, NIH, and FDA (CFSAC Fall 2012)
FDA & Drug Development (CFSAC Fall 2012)
http://www.youtube.com/watch?v=_fIEeQBdvxM&feature=plcp
Public Comment on Day One - PM (CFSAC Fall 2012)
http://www.youtube.com/watch?v=Fs1A6KhHInU&feature=relmfu
Committee Discussion & Plans for Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=PWBmqd8LDhg&feature=plcp
Opening Remarks & Agency Updates (CFSAC Fall 2012)
http://www.youtube.com/watch?v=af_r5LiIjXQ&feature=relmfu
Social Security Administration (CFSAC Fall 2012)
http://www.youtube.com/watch?v=qGb0U6EaI4o&feature=relmfu
Public Comment on Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=MTHpny0u-XU&feature=relmfu
ME/CFS Organizations (CFSAC Fall 2012)
http://www.youtube.com/watch?v=NFaXiiSdZqI&feature=relmfu
A Path Forward (CFSAC Fall 2012)
http://www.youtube.com/watch?v=CO9bO-udcY0&feature=relmfu
Finalize Recommendations (CFSAC Fall 2012)
http://www.youtube.com/user/USGOVHHS/videos?query=CFSAC
Of special interest might be the talk by the Social Security representative, FDA, and the "Path Forward" "Finalize Recommendations" portions. The latter two concern case definitions for ME/CFS. Public testimony sections are always riveting.
Here are the recommendations coming out of CFSAC transcribed by volunteers. The final form is not yet up.
http://www.youtube.com/watch?v=_fIEeQBdvxM&feature=plcp
Public Comment on Day One - PM (CFSAC Fall 2012)
http://www.youtube.com/watch?v=Fs1A6KhHInU&feature=relmfu
Committee Discussion & Plans for Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=PWBmqd8LDhg&feature=plcp
Opening Remarks & Agency Updates (CFSAC Fall 2012)
http://www.youtube.com/watch?v=af_r5LiIjXQ&feature=relmfu
Social Security Administration (CFSAC Fall 2012)
http://www.youtube.com/watch?v=qGb0U6EaI4o&feature=relmfu
Public Comment on Day Two (CFSAC Fall 2012)
http://www.youtube.com/watch?v=MTHpny0u-XU&feature=relmfu
ME/CFS Organizations (CFSAC Fall 2012)
http://www.youtube.com/watch?v=NFaXiiSdZqI&feature=relmfu
A Path Forward (CFSAC Fall 2012)
http://www.youtube.com/watch?v=CO9bO-udcY0&feature=relmfu
Finalize Recommendations (CFSAC Fall 2012)
http://www.youtube.com/user/USGOVHHS/videos?query=CFSAC