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War at Wikipedia

Discussion in 'Action Alerts and Advocacy' started by Levi, Nov 9, 2009.

  1. Dolphin

    Dolphin Senior Member

    I can certainly understand where you are coming from also and in most occasions in my life, if GET and CBT based on GET (or other psychobabble) is promoted for ME/CFS in an inaccurate manner, the person/institution/whatever gets a major black mark for in my eyes (as Wiki does to an extent in this case)
  2. Knackered

    Knackered Guest


    I've noticed there's a lot of misinformation on Wikipedia, anyone can edit articles so I wonder whether we should change articles that represent us incorrectly.

    For example the XMRV article states:

    And makes no reference to the WPI statement regarding different methods used to detect the virus. There are other articles like this too, maybe we could post links to the articles about our illness that aren't written as they should be so we can edit them so they represent us and our illness correctly.
  3. _Kim_

    _Kim_ Guest

  4. Carrigon

    Carrigon Senior Member

    PA, USA
    Is this still going on? They refused to remove the bogus info on actress Maren Jensen. Someone had written that she had "recovered" from CFIDS/ME. She never did. The source I had said she may be dead now. But there was never one shred of proof she recovered. Like anyone can put anything they want in there and the people who are in charge at Wikipedia do as they please.
  5. Angela Kennedy

    Angela Kennedy

    Essex, UK
  6. Adam


    Sheffield UK
    Hi Angela

    I read your correspondence with Kings College. I think you are very brave and determined. I hope one day you get some redress. In the meantime I wish you and your daughter well.

    Perhaps one day someone will write our story. If they do, your battle with Wikipedia and the issue with Simon Wessely over defamation with warrant more than just a mention.

    kind regards


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