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Virus titer results from Dr. Chia... what does it mean?

Discussion in 'General ME/CFS Discussion' started by Dallase1, May 12, 2018.

  1. Dallase1

    Dallase1

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    I am looking into LDN and will discuss it with my PCP. Is it a reasonable first treatment? I also ordered the Oxymatrine to give it a try. I’ve attached my IGG subclass results. Look at them and see if you think I’d be able to get IVIG. My doctor said they’re not low enough.
     

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  2. Hip

    Hip Senior Member

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    I don't know how US insurance works, but I do know it's hard to get IVIG for ME/CFS on insurance. One study found ME/CFS patients with low CD4 counts before treatment are more likely to do well on IVIG.



    It's something worth trying; it only works for small number of patients, but where it does work the benefits are major.
     
  3. Dallase1

    Dallase1

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    I made an appointment with John Chia but am not going for several months. I’ll try the Oxymatrine, selenium and possibly LDN before I see him. To be honest the SIBO is causing a lot of my symptoms.
    Can you recommend any other useful tests for immune function?
     
  4. Hip

    Hip Senior Member

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    I don't know that much about immune tests, but perhaps others her might comment.
     
  5. Dallase1

    Dallase1

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    You’ve been incredibly helpful.
    I am currently on Biotics research supplements:
    Bio3BG, fish oil, vitamin D (10,000 IU), vitamin C, selenium, high dose coq10.
    Have you found any other supplements to be beneficial for fatigue or PEM? I’m scared to exercise because I usually crash hard.
     
  6. Hip

    Hip Senior Member

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    There is a thread on possible anti-PEM supplements here.
     
  7. Dallase1

    Dallase1

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    Thanks. I’ll try the BCAAs. Are there any other immune-stimulating supplements that you’ve found to be helpful in modulating your immune system? I’ve read from some posts that IP6 and transfer factors trifactor formula are good for NK Cells.
     
  8. Hip

    Hip Senior Member

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    I've tried a ton a drugs and supplements over the last 12 years since developing ME/CFS from what appeared to be a coxsackievirus B4 infection, but most things are of little help. But every now and then you do find something that works. But what works for one patient may not work for the next.

    Oxymatrine and inosine (or the drug version of inosine called Imunovir) are the main immunomodulators used by ME/CFS doctors to stimulate the fight against viral infection. You take both oxymatrine and inosine together.

    You might find this roadmap of chronic fatigue syndrome treatments of interest.
     
    Jennifer J likes this.
  9. Dallase1

    Dallase1

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    Are Oxymatrine and inosine better when used together? I may try just Oxymatrine for a couple weeks and then add the inosine to see if there are adverse reactions. Six capsules of Alternative Medicine (300mg) capsules and how much inosine? I know for sure I can’t take equilibrant from the liqorice (it raises my liver enzymes every time).
     
  10. Hip

    Hip Senior Member

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    I am not sure of the inosine dose used by ME/CFS doctors, but when I tried it myself I took 2,000 mg daily. If you search the forum, you might find some dosing info.
     
  11. Stretched

    Stretched Senior Member

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    @Dallas1. If you’re having pain along with a suspect virus you could try Dr. Scott Pridgen’s protocol of Famvir and Celebrex (NSAID). He has a theory on
    why this works, though he’s a surgeon. I suggest a Google search for elaboration unless someone here knows an in forum link, restating a summary. I personally tried it and
    had good results.
     
    Last edited: May 15, 2018
  12. Dallase1

    Dallase1

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    I was also tested and showed to be “actively” fighting Chlamydia pneumoniae. I am not sure what to do. Apparently it’s very common and I never have any respiratory issues. I really don’t want to go on antibiotics for years. Are you familiar with this?
     
  13. Hip

    Hip Senior Member

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    Dr Chia has a paper showing that in cases studies a month of two of azithromycin works wonders for people whose ME/CFS is linked to Chlamydia pneumoniae.

    Azithromycin is a good antibiotic for this, because it collects inside cells, where the Chlamydia pneumoniae is located.
     
    Stretched likes this.
  14. Dallase1

    Dallase1

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    The only thing though is I have never had any respiratory issues like these participants had. All of my issues seem to be gut-related. I wonder if I should ask my doctor about this antibiotic?
     
  15. Dallase1

    Dallase1

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    Thanks for commenting! The one thing I don’t have any of is aches and pains. I don’t have any respiratory symptoms either. I have mild chronic fatigue with stomach issues. Can you share wisdom about what has helped your fatigue?
     
  16. Stretched

    Stretched Senior Member

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    Then is the proper diagnosis “MECFS?” Or, are we simply addressing ancillary ailments? ‘Seems to me the CFS diagnosis is attributable when all other causes
    have been ruled out, especially those treatable with antibiotics.:thumbdown:
     
  17. Hip

    Hip Senior Member

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    Certain chronic infections have for many decades been proposed as the cause of ME/CFS. While there is no definitive proof of this, treatments which target these infections have been shown to improve ME/CFS symptoms or put patients into remission.
     
    Stretched likes this.
  18. Stretched

    Stretched Senior Member

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    I’m a pragmatist up to a point. If it works, turn on the light switch... .
     
  19. ljimbo423

    ljimbo423 Senior Member

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    Hi @Dallase1 - I am having good success treating my gut. I have seen you post concerns about your gut a few times in this thread. I say trust your gut! Pun intended.:)

    There is a lot you can do to treat your gut with a low carb diet, herbs to kill off bacterial overgrowth and supplements to take to help heal increased intestinal permeability.

    Jim
     
  20. Dallase1

    Dallase1

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    Jim,
    I just did the elemental diet and herbs for two weeks. It was so hard but I started feeling better. Not long after starting food I got worse again with fatigue and just nausea! So I’m thinking I may have SIBO and it may be causing a lot of my problems. What has worked for you? I don’t have CFS nearly as bad as I did a year and a half ago.
     

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