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The consensus among patients seems to be the challenges we face are not entirely due to the quality of science, but due to the agendas of certain organizations.
My personal impression is mainly Big Pharma, who influences government agencies and owns media centers.
How it the heck we going to get anything done with all these roadblocks? Power in numbers. We out number these people 1000 to 1 easily.
There are some very powerful tools created recently that may not been completely utilized. Some extremely powerful movies and videos lately that send a strong message. All we need to do is make them known to others. We will help other groups with the same predicament.
1) Dr Kenneth Friedman testimony
Dr Kenneth Friedman NIH testimony
2) Under Our Skin
http://www.underourskin.com/
3) Burzynski Movie
http://www.burzynskimovie.com/
4)?
The idea is simple. Everybody knows somebody that is sick, or has a family member that is sick. If you can think of somebody that might be receptive, consider sending them a video link to help raise awareness. You might even help save some lives in the process.
I like to Email a strangers. There is no downside, and unlimited upside. You can also ask they send the video on to someone else if they liked it.
That's it.
If you are really talented, make a video documenting the CFS history or XMRV history.
I've sent a couple emails. Hope you do too.
Thanks!
Mark
My personal impression is mainly Big Pharma, who influences government agencies and owns media centers.
How it the heck we going to get anything done with all these roadblocks? Power in numbers. We out number these people 1000 to 1 easily.
There are some very powerful tools created recently that may not been completely utilized. Some extremely powerful movies and videos lately that send a strong message. All we need to do is make them known to others. We will help other groups with the same predicament.
1) Dr Kenneth Friedman testimony
Dr Kenneth Friedman NIH testimony
2) Under Our Skin
http://www.underourskin.com/
3) Burzynski Movie
http://www.burzynskimovie.com/
4)?
The idea is simple. Everybody knows somebody that is sick, or has a family member that is sick. If you can think of somebody that might be receptive, consider sending them a video link to help raise awareness. You might even help save some lives in the process.
I like to Email a strangers. There is no downside, and unlimited upside. You can also ask they send the video on to someone else if they liked it.
That's it.
If you are really talented, make a video documenting the CFS history or XMRV history.
I've sent a couple emails. Hope you do too.
Thanks!
Mark