Vibrations and JUMPING feet waking me up

[sleepy237]

I keep being awakened by these horrible sensations like some kind of electricity in my body like a cell phone vibrating in my veins That's bad enough but on two occasions my feet have been jumping around on waking along with this. Is this a messed up nervous system or some kind of partial seizure. Eventually, it does go after some moving of my feet around, but it's freaking me out atm. ~Sleepy

 

[alex3619]

Hi sleepy, there is a condition called restless legs syndrome that is common in ME/CFS. I don't know much about it, but it is treatable in many cases, and treating it improves sleep quality. Maybe someone who knows more about it can comment further. Bye, Alex

 

[Wonko]

Yes it sounds a bit like RLS, the only way I've found of treating it is to remove as many drugs from your life as possible and eat healthily (ie cut out as much artifical stuff as possible) - I'm surprised to hear it's considered treatable as my GP (NHS) has assured me it's not and just to live with it.

it's a very variable condition - it comes and goes for no obvious reason, although in a lot of cases (from a personal perspective) it gets worse when I'm pushing too hard - which is really clever - if pushing too hard I really need my sleep and so of course along comes the RLS.

Somebody out there hates me - and it's probably me.

 

[ukxmrv]

I get the same Sleepy, What helps me is

1. Magnesium at night
2. Folate in some form during the day or night
3. Potassium at night
4. The drug Baclofen if the supplements don't work

 

[sleepy237]

@Alex thanks I know you have heard the same thing from me before . I had a look at RLS and it sounds kinda different but then as Wonko says it's variable i dunno, @ Wonko thanks but seems im adding drugs on (low dose) instead of taking them out not good with MCS but the lesser of two evils, @ Ukxmrv thanks I will try the first three, I was already refused Baclofen told it was too toxic for me *sigh*
I know that hormones can increase inflammation and I am wondering if this is a player in this random symptom, for me anyway at this time. Thanks all ~ hugs ~ Sleepy

 

[taniaaust1]

I used to get that.. firstly in just my legs but at a later point it affected my whole body, the body jerks and spams used to wake me up. A doctor told me I had restless leg syndrome (so then I ended up calling it restless body syndrome).

Be aware that this issue thou its common in CFS/ME, it can thou also be caused throu drug side effects.

As another said restless leg syndrome "may" be treated with drugs. A drug which can be good for ones with CFS/ME (helps balance our over active nervous system and is recommended by many CFS/ME specialists) is Clonazepam. It may help your RSL and some other CFS/ME symptoms. (it can be a great drug if you also get anxiety).

http://en.wikipedia.org/wiki/Clonazepam

I suggest to check the drugs you are currently on too.. and see if you are taking any which may further overactive your nervous system. Many drugs carry warnings for epileptics as they can stimulate nervous system and may cause seizures. Check to see if you are on any of those.

 

[taniaaust1]

deleted.. double posted

 

[sleepy237]

Thanks Tan hugs, not sure if I'd get prescribed that I just got pregabalin/lyrica and haven't started it yet due to sensitivities and that has a lot of side effects but I did read it had been helpful in some cases of RLS.

 

[Chakra5]

Hey sleepy237

I've found two things that have helped with RLS for me. First, staying hydrated makes all the difference. YMMV but it's night and day for me.

Some times I fail to stay hydrated for whatever reason and then I have a wonderful liniment prescribed by my doctor that really helps a great deal called ketocam (gel/liniment) which contains cyclobezaprine, a muscle relaxer. RLS sucks sooo bad, but when it strikes, this stuff works wonders for it. I have yet to have it not solve the issue for that evening. Then I get back to drinking a lot of water the next day.

Hope you find what works best for you!

 

[lucy]

I have recently developed similar problems. First for several months I had leg jerks during the day (up to 5 times), then some head tremors (would be too early for some parkinsons, being 28), and last week I was sent to emergency department to neurologist as my arm and shoulder were jerking uncontrollably every 2 secs. The jumping arm stopped being silly after about 24 hrs, and as it was after lunch, I was thinking about metabolic issues. Also, I started bactrim just two days before the arm started to have its own independent fun. I still have occasional jerks, bet 1 per hour at most. Feels great. I was prescribed clonazepam, and it seems to calm down those occasional jerks, also it reduces palpitations.

But it seems it is a strong medication, I get totally drowsy (quite in a positive way).

Did anybody have similar experiences with some parts of the body jumping like that during the daytime?