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Valycte Question

Discussion in 'General ME/CFS Discussion' started by CFS_Kristin, Feb 25, 2018.

  1. CFS_Kristin

    CFS_Kristin Senior Member

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    For those of you who are on Valycte, how long did it take before you noticed a difference or improvement?

    Just started 450 mg, 2 x a day about a week ago.....thanks!
     
  2. Hip

    Hip Senior Member

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    Dr Martin Lerner's clinical trials show that improvements will begin to appear at the 3 or 4 month stage, with the full benefits taking 1 or 2 years to manifest.
     
    eric_gladiator and shannah like this.
  3. lindasch100

    lindasch100

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    I am somewhat different than most. I started Valcyte 1800mg At the end of the 4th day I opened my eyes wide and said (out loud) "I feel different". And many of my autonomic symptoms started to improve. After 2 weeks, the dose was reduced to 900mg and I went downhill. Later back up to 1800mg and the very same routine. At the end of the 4th day "I feel different". I have been on that dose for 10 days and better each day. But we are waiting for blood test results on my liver (may be a problem). If so, back to a lower dose.
    Everyone I have heard of has to be on it for months, although Jennifer Brea (Unrest) took Valcyte and her movie implied that she had very fast improvement.
     
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  4. Timaca

    Timaca Senior Member

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    It was after about 4 1/2 months of taking it that I woke up and thought "I don't feel as sick anymore." It was the day after Thanksgiving. I was so grateful. I am currently on Valtrex.... 500 mg twice a day. I tried to reduce it to once a day and that did not work.
     
  5. Learner1

    Learner1 Forum Support Assistant

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    Pacific Northwest
    I started on 1.8g a day and my brain fog cleared during the first 30 days. My viral PCRs were negative after 5 months. I've been on it 9 months. My doctor just reduced it to 900mg today, and we're going to see how I do.
     
  6. lindasch100

    lindasch100

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