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Updated appeal from David Tuller

medfeb

Senior Member
Messages
491
Reposting as a new thread to higlight. Hope that's okay

David Tuller has posted an updated appeal stating that he has met his original goal of $60K - thanks to this amazing community.

David is going to let the campaign run till the end of June as originally planned and use any additional funds to cover travel to other countries and if possible, to extend his Berkeley appointment beyond 6 months. Besides for PACE, he hopes to also smack down the recent Cochrane review over the next year.

If you have not had a chance to donate and are able to, please do so - the link is here: https://www.crowdrise.com/virology-...e-reporting-on-pace-mecfs-and-related-issues1.

Update #2 posted on CrowdRise - https://www.crowdrise.com/fundraiser/campaign-updates/1306193#!/status/2
The response from the community to my campaign has been incredible--beyond what I imagined when I launched it a few weeks ago. I’ve been enormously touched and heartened by the donations and comments. I certainly didn’t think I would have to consider what I’d do if I over-shot my goal of $60,000. But yesterday the donations passed $55,000, and that has triggered Erica Verillo’s amazingly generous $5000 matching contribution. I’ve now secured my half-time position for the next 12 months, with 10 days more to go in this campaign. So I need to explain why I hope people continue to donate.

PACE-busting is a big, big job! Basically, more donations will allow me to do more. Over the last year or so, I’ve been asked by many people in many countries—Australia as well as across Europe, in addition to the U.K.--to visit and expose the harms caused by their own domestic PACE/CBT/GET ideological brigades. Since February of 2016, I’ve gone to the UK four times and once to the Netherlands, for research and interviews as well as talks in Amsterdam, Belfast and London. I have travelled as cheaply as possible, crashing with friends and sometimes staying in hostels--I haven’t noticed many others of my advanced age in these dormitory rooms! But the costs have still added up.

In the next 12 months, I hope to go to Australia, because the situation there is awful, and take at least two more times to the U.K. and hopefully to one or more of the other European countries suffering under this terrible burden. In addition to conducting research and interviews, I will seek to arrange talks to both patient groups and professional/academic audiences; these talks, I have seen, are an important means of spreading awareness of what’s gone on. I will budget up to $10,000 for travel—about half for Australia, and the other half for Europe. Any additional funds will be used to extend my Berkeley appointment proportionally beyond next June 30th--for a month, two months, or whatever.

Before the end of the campaign, I am hoping to post another couple of blogs. One is about an 87-year-old retired GP who was patient #234 in the Royal Free outbreak. The second is about an issue I have tip-toed around and finally raised in my Invest in ME talk: Is PACE a case of scientific misconduct? (It’s probably not hard to figure out what my answer will be.)

What else will I be working on over the next year? I plan to smack down the recent Cochrane review, which was able to conclude that GET worked only because of the egregious decision to include PACE and other Oxford criteria studies. I plan to look at the challenges people face in obtaining desperately needed help from government agencies and insurance companies. I plan to examine the PACE investigators’ conflicts of interests, including their intervention in specific cases in which patients have sought benefits. I want to track down other surviving patients from the Royal Free outbreak, and to deconstruct the 1970 paper that reinterpreted that that seminal event as a case of mass hysteria. And so on.

I certainly have my work cut out for me! Even though I have reached my initial ambitious fund-raising goal, every additional contribution will be put towards a single purpose--helping me bust the false PACE/CBT/GET paradigm for good.
 
Messages
2,158
After today's Lancet article on the latest Peter White travesty of research, and the Daily Telegraph uncritical article saying we can get better with exercise, the only possible response is more funds for David Tuller. I have therefore just given a bigger donation than my last one. This madness has to stop. Thank you David.
 

Seven7

Seven
Messages
3,444
Location
USA
After today's Lancet article on the latest Peter White travesty of research, and the Daily Telegraph uncritical article saying we can get better with exercise, the only possible response is more funds for David Tuller. I have therefore just given a bigger donation than my last one. This madness has to stop. Thank you David.
I am still trying to understand that one, was it on new patient cohort or the same patient cohort from PACE? if it is new where was this paper again ? I would like to read it.,
 
Messages
2,158

LaurelW

Senior Member
Messages
643
Location
Utah
I've tried three times, and the page won't let me donate. After I fill out all the info and hit the donate button, the page refreshes but won't do anything else. Any clues?
 

Jennifer J

Senior Member
Messages
997
Location
Southern California
I was wondering if anyone has frequent flyer miles from flying or charging things on their charge card, or knows anyone that does?

I knew an older lady a few years ago that had all these frequent flyer miles from using her charge card and she could give them to other people so they could fly for free. Perhaps, people can do this for David so he wouldn't have the expense of flying?

Also, if anyone has connections, certificates, etc to get him in hotels for really cheap or free so he can be fresh and rested from not staying at youth hostels, or could house him (if David is comfortable with that), that would help extend his finances, too, and be nice for him.

Thank you everyone that contributed to his fund :thumbsup:, and thank you David Tuller! :hug:
 
Last edited:

Sean

Senior Member
Messages
7,378
I knew an older lady a few years ago that had all these frequent flyer miles from using her charge card and she could give them to other people so they could fly for free. Perhaps, people can do this for David so he wouldn't have the expense of flying?

Also, if anyone has connections, certificates, etc to get him in hotels for really cheap or free so he can be fresh and rested from not staying at youth hostels, or could house him (if David is comfortable with that), that would help extend his finances, too, and be nice for him.
Worth highlighting.