Sing
Senior Member
- Messages
- 1,782
- Location
- New England
I have been away so long, I am just reading through today. I feel badly that I missed knowing of your accident, Alex, because I would have written too, to let you know I also care. It has also been wonderful to hear the voices of this community which I have been getting to know and becoming fond of over the past several years. Your accident brought us together as a community, which really feels great!
I went through a long saga too, of surgery, hospital and long rehab, with a hip replacement job four years back. Like you, living alone with the daily struggles, OI, brain fog, weakness, accident prone. It is noteworthy how much assertiveness, monitoring, management and patience it took being in institutional care with a very marginal brain. I barely coped with these challenges and the next time I may not be able to. Then what? I need to get some T shirts printed up with Not Well Enough To Be Sick, for my hospital stay.
The long bizarre struggle to get computer access was awfully familiar too.
Then the wonderful comments about all the ironies and contradictions in how people see us and misconstrue what they see, plus our attempts at managing our presentations and the success/failure of these. I am up for more sharing on this subject!
Well, Alex, I hope you hit the ball out of the park when you start writing to health administrative authorities in your country. I think you may have a new job for a time, as you have tracked some of the dysfunctions back into their sources. And if your voice really does sound like James Earl Jones, I suggest that you also consider making phone calls or being interviewed someplace public, because when James Earl Jones talks, everyone listens...
I went through a long saga too, of surgery, hospital and long rehab, with a hip replacement job four years back. Like you, living alone with the daily struggles, OI, brain fog, weakness, accident prone. It is noteworthy how much assertiveness, monitoring, management and patience it took being in institutional care with a very marginal brain. I barely coped with these challenges and the next time I may not be able to. Then what? I need to get some T shirts printed up with Not Well Enough To Be Sick, for my hospital stay.
The long bizarre struggle to get computer access was awfully familiar too.
Then the wonderful comments about all the ironies and contradictions in how people see us and misconstrue what they see, plus our attempts at managing our presentations and the success/failure of these. I am up for more sharing on this subject!
Well, Alex, I hope you hit the ball out of the park when you start writing to health administrative authorities in your country. I think you may have a new job for a time, as you have tracked some of the dysfunctions back into their sources. And if your voice really does sound like James Earl Jones, I suggest that you also consider making phone calls or being interviewed someplace public, because when James Earl Jones talks, everyone listens...