Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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"Unrest" updates

Discussion in 'General ME/CFS News' started by Sasha, Mar 11, 2017.

  1. hinterland

    hinterland

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    I thought the same as you about the Guardian article, as it is true to form. But I’ve just clicked on the author link and she gives low ratings across many of the films she’s reviewed. She may just be a cynical person.
     
    ukxmrv and TreePerson like this.
  2. TreePerson

    TreePerson Senior Member

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    Yes @hinterland I think you are right about the cynicism. Originally I thought it had been written by a woman and then for some reason I think perhaps the spelling of Leslie made me think it was a man so I went back and changed all the pronouns in my comment.
    I feel pretty confident that The Guardian have an agenda when it comes to ME but this is less likely to extend to film reviews.
     
    ukxmrv and hinterland like this.
  3. hinterland

    hinterland

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    Unrest is available on Amazon Video, in the UK, from last night. Pay to view: £12.99 to buy. You can install the Amazon Video app on your smart tv for free, and don’t need to be a Prime member to watch pay to view content.
     
    Gingergrrl and ukxmrv like this.
  4. Joh

    Joh Inactivist

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  5. Cheesus

    Cheesus Senior Member

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    My iTunes preorder came through and I just got finished watching it. I thought it was very good.
     
    TreePerson, NelliePledge, CJB and 6 others like this.
  6. Cheesus

    Cheesus Senior Member

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    This quote from Jen really resonated with me (may be a spoiler if you want the entire film to be a surprise):

    If i completely disappear and i’m in this bed and i can do nothing then it's like i don’t even exist or that I never existed. And then what was the point of it all? Of being born in the first place?

    Honestly there are a lot of days when i feel like i am doing a good job by holding it together and not killing myself. I am really proud of that. I really don’t want to die, I really don’t want to die, but at a certain point it is hard to call this living, and I think the grief of all those things i might not do or see or have…
     
  7. debored13

    debored13 Senior Member

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    I agree that this movement needed that. You are so right, and I think have a killer instinct. I was an artist and musician before I got sick (hopefully will be still in the future) and so I'm kind of a snob, I guess? I sat down with no context to watch the film and thought it might be hard to get through just because documentaries about chronic illness that are framed in advocacy terms can be really boring or corny. But I think I watched it not just as someone with CFS/ME, but as someone wanting to watch a film, and was drawn in by it. I think it was really good, and I think I could show that to people who don't know much about CFS/ME and they would be pretty drawn in by it. It has a heavy emotional impact. I empathize with almost every part of your story. I wasn't a PhD student at Harvard but was extremely ambitious before I got sick and I feel like everything has been robbed from me. It's brought me to some low places.

    Hopefully I can show this to my parents when it comes out on DVD and they will be more understanding.
     
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  8. debored13

    debored13 Senior Member

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    Yeah i think everyone attacking Jen for not portraying x or y thing perfectly needs to chill. Imagine how fucking hard it must be to make a Sundance film of this scope while you're that sick? some people might be sicker than her, but I'm doing pretty terribly and have never needed a wheelchair or been unable to talk, so I grant her that she's pretty sick. Or at least has been at points. I think that it's amazing that she had a caring spouse to help with this as well as, probably, a team of people, and that's the only way it's realistic to accomplish something like this while sick, but I'm also sure that her vision and instinct was good. She's a good face of this illness. People that are used to marginalizing the chronically ill and thinking of them as on the outskirts of society will have a harder time doing this with someone that was a charismatic young(er) PhD student at Harvard when she got sick. For better or worse that really helps. She's doing a really tricky thing. You have to show how hard the illness is while not making footage so abject that people don't want to watch it.
     
    CFS_for_19_years likes this.
  9. Joshybo

    Joshybo

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    Mrs Sowester, Did you make any headway with The Regal in Wadebridge? I'm interested in setting up an Unrest screening there too.
     
    Mel9 likes this.
  10. Chelby

    Chelby

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    I would love to see a PACE expose documentary.
     
    MEMum likes this.
  11. MEMum

    MEMum Senior Member

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    I think Mrs Sowester's health has deteriorated recently, which is probably why you have not heard anything.
    I would recommend you go ahead and organise something. There are a fair few members from the SW area I think.
     
    JaimeS likes this.

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