Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Be sure to give it a like and/or add it to your Nexflix list.Kudos to Jennifer Brea for getting movie on Netflix. It should exponentially increase potential viewers. This is exactly what the ME/CFS community needs for disease awareness. Maybe a show like 60 minutes on CBS will consider featuring Unrest and the plight of ME/CFS patients with interviews with patients and researchers.
Done. I loved it. She did such a great job. I hope it gets more viewers on Netflix, but you have to type it in to watch it. Very impressed. Love Omar, too. Great guy!
Yes, did this myself earlier today.Be sure to give it a like and/or add it to your Nexflix list.
I felt the same.... I'll admit I completely sobbed in places - the shoes killed me....when Jennifer broke down in severe PEM after the rally... but strangely, amidst my pain, I felt such a deep, loving connection to so many in this world suffering as I; and such a enormous respect and gratitude for all those wonderful people out there like Ron Davis trying to do everything in their power to help...to them, I am eternally thankful. To us, I am forever in hopeI wasn't going to watch because it's all too depressing, but I'm glad I did watch... She did a great job, and now I feel like I can point ppl some place... I can tell them to go watch this movie instead of explaining, which I hate b/c I sound like a whiner/crazy/loser...
------ Dr Klimas was very impressive and extremely convincing about the problems in the immune system and the mitochondria. Did I misunderstand, or was she somehow comparing it to aids in the immune deficiency sense?
How can we increase the sense of urgency about this monstrous illness?
Just watched Unrest. I sobbed for most of the movie. The movie touched on suicide and featured an article about my friend Patrick Kelly's suicide and I just broke down. It was totally unexpected yet I had lit a candle and put it by his photo before watching! R.I.P. Patrick, you were so intelligent, compassionate, articulate, and creative.
I have struggled with idiopathic CF and aerobic exercise intolerance and do not technically have CFS. However I could relate to the struggles of the individuals in the movie and my heart breaks for all of them, and you, the people on these message boards. I have been bed-bound before, especially in the first year of my illness.
If this documentary raises awareness by decreasing stigma and helping funding for research then what a milestone it is! Personally just feeling so invisible regarding my illness, and misunderstood, I feel so much gratitude for Jennifer Brea. Visibility is key and invisible illnesses/disabilities need attention. Interesting fact that more people have CFS than Multiple Sclerosis yet the funding doesn't compare. It is such a lonely experience to be outcast while other people with illnesses like Cancer have strong visibility in a communal way and a lot of support. ALL people with illnesses deserve support, love, and encouragement. I wish people could be as compassionate as Jennifer Brea's husband.