Kati
Patient in training
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Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Sundance: Medical Mystery Doc 'Unrest' Nabbed by PBS
The film, which will air on the network's 'Independent Lens' series, chronicles director Jennifer Brea's battle with Chronic Fatigue Syndrome.
The medical mystery doc Unrest has been solved by PBS. The network has acquired U.S. broadcast rights for its Emmy Award-winning series Independent Lens.
The series will broadcast the film during its first quarter in 2018, following a national theatrical release.
Why do they say our illness is an autoimmune disease?: 3rd paragraph down:
"Brea, then a Harvard PhD student, thought she could fight the autoimmune disease with symptoms that include muscle pain and sensitivity to light and sound by telling herself what she had was merely “in her head.” But despite her willpower, Brea collapsed once she made it to the door."
GG
@*GG* I don't think that the possibility of ME being an autoimmune disease has been rules out yet, has it ?
http://www.imdb.com/title/tt3268850/reviews1 out of 1 people found the following review useful:
Blow you out of the water good
Author: exceedhergrasp from United States
31 January 2017
One of the most compelling documentaries I've ever seen. From moment one ("Princeton Veterinary Hospital") Jen and Omar reel you into the mad, new life Jen's illness has shaped for them. The movie goes beyond educating people about a poorly-understood illness. Instead, it vividly recreates the reality of Jen and the other patients, and it does so with such humor, humanity, and loving-kindness that you feel as though you know all of these people and are deeply invested in their small triumphs. An absolute must for any documentary devotee, and anyone who struggles with chronic illness or is struggling to understand the world of someone who does.
I know this is full of superlatives, but I can't help it. Ugly crying was involved when I saw this story, but it somehow manages to be uplifting instead of despairing. I can't recommend it highly enough.
http://movies.blog.austin360.com/20...mines-pain-riddled-life-with-chronic-fatigue/Fraught with honesty, “Unrest” gives us a raw and up-close look at how a chronic illness can impact a relationship. Her husband Omar sacrifices his time and energy to ensure that she is taken care of, but the situation clearly takes its toll on both of them.
Some even believe that it is a psychosomatic condition, best treated through psychiatric means. Still, there appears to be a growing consensus that the symptoms are real, related in some way to autoimmune deficiencies. But there is enough dispute – and rejection of its reality – that those afflicted with it suffer twice, first from the disease and then from the stigma attached to it.
Brea knits together a global community in a way that is beautiful and empowering. Her voice lifts a film that is both charged with urgency and slowed down to the speed of a disease that freezes lives in place while the world seems to pass by. “Sickness doesn’t terrify me, and death doesn’t terrify me,” Brea says. “What terrifies me is that you can disappear because someone’s telling the wrong story about you.”