Twittering the IACFS/ME Ottawa Conference Pt. II

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Twittering the IACFS/ME Ottawa Conference Pt. II

Posted by Cort Johnson
Quick hits from the first two days of the Conference. Follow CortJohnson on Twitter tomorrow for more

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#IACFS/ME - #Clauw reports #interstitial cytisus (allied with #CFS) will change name next year to reflect understanding about CNS origin


23 Sep

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#IACFS/ME - #Clauw reports #interstitial cytisus research community acknowledges they were all wrong; its all the central nervous system.


23 Sep

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#IACFS/ME - #Baraniuk says #brain proteome #CFS validation study went even better than expected. Wins the prize for most posters - six!


23 Sep

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#IACFS/ME - #Simmaron Foundation by Dr. Peterson is present with a room set up (and a nice spread) last night.


23 Sep

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#IACFS/ME - Tom Carlson of #CFI (Chronic Fatigue Initiative) is here meeting with his CFS diagnostic team. (I almost crashed their lunch.)


23 Sep

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#IACFS/ME - I heard from a Norwegian journalist that the #Rituximabresults for #CFS are in and should be published soon.......


23 Sep

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#IACFS/ME - Neg finding from independent lab suggests VP62 contamination did not occur at WPI, Silverman not at conference to respond.


23 Sep

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#IACFS/ME - #Mikovits sends subsets of contaminated Silverman #XMRV samples to independent lab, IAP neg/VP62 contamination section not there


23 Sep

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#IACFS/ME- #DeMeirleir says he has an idea re: which endogenous retroviruses might be causing antibody results in #CFS but was mum on which


23 Sep

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#IACFS/ME - #DeMeirleir states increased endogenous retrovirus activation in #CFS could be due to inflammation or herpesviruses


23 Sep

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#IACFS/ME - #DeMeirleir, however, reports that increased #XMRVantibodies could also be due to endogenous retrovirus activation.


23 Sep

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#IACFS/ME - #DeMeirleir reports finding antibodies to# XMRV in 57% of CFS patients and only 14% of controls in samples sent to #WPI


23 Sep

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#IACFS/ME - in difficult patients section Lapp says he will start sending endoscopy samples to Dr. #Chia for testing for #enteroviruses


23 Sep

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IACFS/ME Ottawa - Clauw reports that FM is everywhere! and looks the same everywhere....it looks the same in Kenya as it does in the US


23 Sep

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IACFS/ME Ottawa - Clauw believes in the next 10-20 years, medical est. will get that CFS/FM conditions are most expensive/ prevalent of all


23 Sep

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IACFS/ME Ottawa - Clauw believes an FM/CFS like-condition occurs in 20-30% of ALL disorders...20-30% of arthritis, cancer,,patients have it


23 Sep

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@TomKindlon - hey Tom Thanks for picking up my tweet on the conference. I can't even pick it up on the search bar.


23 Sep

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IACFS/ME: Montoya suggests NIH convene meeting to create a standardized approach to research protocols for CFS...


23 Sep

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IACFS/ME Ottawa - Montoya says focus on PBMC's in studies means CFS researchers are missing important information on TLR's and others.


23 Sep

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IACFS/ME Ottawa- Montoya suggests researchers have been looking at the wrong part of the immune system in CFS; should be studying innate sys


23 Sep

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IACFS/ME Ottawa - Only Ruscetti and WPI find XMRV in BWG study but in different patients and in as many healthy controls as CFS patients.


23 Sep

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IACFS/ME -BWG group presents devastating results for validity of WPI's test for XMRV. WPI's culture test has problems and is not completed.


23 Sep

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IACFS/ME Ottawa - Mikovits says full genetic sequencing of 'dozens' of isolates will take time because of limited resources.


23 Sep
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