Twittering the IACFS/ME Conference Pt III

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Twittering the IACFS/ME Conference Pt III

Posted by Cort Johnson
Quick hits from the IACFS/ME Ottawa Conference






#IACFSME - on last day room is quite full. Immune session begins with 3 positive studies on #CFS fr. Australia (Bond), CDC and Lights (Utah)


21 hours ago

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#IACFSME - brain blood flow study finds significantly reduced blood flows - anterior cingulate region may explain increased lactate in brain


19 hours ago

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#IACFSME - findings validate strong earlier interest in anterior cingulate region by UK ME researchers


19 hours ago

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#IACFSME - confusing Jones CDC study suggests too many signals from body making their way to the brain overwhelming it


19 hours ago

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#IACFSME - Jones proposes that sense of self is interrupted by constant barrage of signals from body....self becomes body sensations in #CFS


19 hours ago

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#IACFSME - Clauw proposes sensory processing is key problem in FM and related disorders. Lights believe sensory processing nerves play role


19 hours ago

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#IACFSME - ME researcher Baraniuk has suggested that the 'gates' that filter sensory information to the brain could be broken in #CFS


19 hours ago

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#IACFSME - #Emory researcher Miller finds reduced activation in basal ganglia in #CFS which is strongly associated with increased fatigue


20 hours ago

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#IACFSME - Miller proposes treatment options should focus on reducing inflammation and enhancing dopamine metabolism in the brain in #CFS


20 hours ago

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#IACFSME - Miller proposes pro-inflammatory cytokines in #MECFSknock out dopamine in basal gangia causing fatigue/ difficulty with movement


20 hours ago

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#IACFSME - Inflammatory cytokine administration (IFN-@) has been shown to reduce dopamine and activate basal ganglia as it attempts to cope


20 hours ago

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#IACFSME - ME researchers years (Chaudhuri?) ago suggested basal ganglia might be the seat of fatigue in #CFS, Miller's study validates that


20 hours ago

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#IACFSME - #CDC researcher Boneva findings could suggest adrenal insuffiency, urges aldosterone, renin studies in #CFS


20 hours ago

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#IACFSME - #CDC researcher finds greatly decreased aldosterone levels in #CFS possibly explaining low blood volume and heart stroke volume


20 hours ago

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#IACFME - #Klimas study validates Kerr #MECFS gene expression study including altered immune, viral oncogene, enterovirus and NFKB gene


21 hours ago

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#IACFSME - #Klimas study validates Kerr gene expression findings in spades with many Kerr genes being highly different in #CFSincluding EBV


21 hours ago

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#IACFME - #Klimas study validates Kerr gene expression findings in spades with many Kerr genes being highly different in #CFSincluding EBV


21 hours ago

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#IACFSME - #Hyde agrees with Unger stating we are not dealing with one disease but several diseases, more comprehensive exams are necessary


21 hours ago

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#IACFSME - in GWS neuroimmune pathways are damaged & their systems are upregulating in order to get around them.... - not happening in #CFS


21 hours ago

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#iACFSME -#Klimas states in #CFS neuroimmune pathways are being shut down = fewer pathways are available that work -in GWS its the opposite


21 hours ago

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#iACFSME - GWI researcher suggests that alterations in detoxification gene (PON1) may have put personnel at risk in Gulf War


21 hours ago

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#IACFSME - #CDC Chief Unger states motto is now 'CFS in motion'; CDC will use stress tests in all further studies to boost findings


22 hours ago

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#IACFSME - #Brenu finds microRNA's may be shutting down NK cell functioning and cell suicide (of infected cells)...1st miRNA #MECFS study


22 hours ago

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#IACFSME - #Mangan says CoMorbid Pain Working Group including#CFS with high Institute Support has been formed at NIH to look at connections


22 hours ago

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#IACFSME - #Mangan states they're all studying autonomic nervous system and other similar systems as #CFS, he was amazed at the similarities


22 hours ago

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#IACFSME - #Mangan visits conferences on Interstiial cytisus, vulvodynia, TMJ (allied disorders), states all sound like #MECFSconference


22 hours ago

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#IACFSME - Strong US/Australia partnership has clearly developed between Dr. Peterson and Dr. Staines at Bond University In Queensland


23 hours ago

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#IACFSME - Bond Univ/Peterson POSTER - preliminary data indicates genes involved in the 'gestational process' are different in #MECFS


25 Sep

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#IACFSME - Bond Univ/Peterson POSTER - preliminary data suggests why women with #CFS (and autoimmune diseases) feel better during pregnancy


25 Sep

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#IACFSME - Bond Uni/Peterson POSTER -Preliminary spinal fluid data suggests purinergic signaling, key finding in Light's work, is off -#CFS


25 Sep

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#IACFSME - Bond Univ/Peterson POSTER - NK cell, cytokine & immune data taken before/after vaccination suggest vaccines may play role in #CFS


25 Sep

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#IACFSME - #Bond Univ Aust POSTER -low NK cell functioning patients have altered cytokines, microRNA and cytotoxic molecules in #MECFS


25 Sep

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#IACFSME - #MECFS Aussie researchers from Bond University working with Dr. Peterson make big splash in the POSTER section with FIVE posters


25 Sep

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#IACFSME - #CDC will do comparison studies of patients in #MECFS physician practices and random population samples, expects differences


25 Sep

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#IACFSME - #CDC chief Unger defends 'Empirical Definition', says upcoming paper will show ED is not misdiagnosing #CFS, will continue to use


25 Sep





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#IACFSME - #CDC chief Unger says no more random population studies, will be studying patients in well known #MECFS practices in future


25 Sep





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