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Twisk: ME, CFS or SEID: What’s in a name?

Discussion in 'Latest ME/CFS Research' started by mango, Jul 30, 2016.

  1. mango

    mango Senior Member

    Myalgic Encephalomyelitis, chronic fatigue syndrome or systemic exercise intolerance disease: What’s in a name?

    Frank N.M. Twisk, MBA MBI BEd BEc
    ME-de-patiënten Foundation, Zonnedauw 15, 1906 HB Limmen, The Netherland

    Asian Journal of Psychiatry October 2016 Volume 23, Page 70
    Published Online: July 21, 2016. Received: July 3, 2016

    With interest I have taken notice of a contribution by Sen and colleagues (Sen et al., 2016). According to the Sen et al. (2016) replacing Chronic Fatigue Syndrome (CFS) (Fukuda et al., 1994), a “mental disorder” which is “characterized primarily by the symptom of severe, persistent and disabling fatigue” and “included in the DSM-IV-TR within the rubric of undifferentiated somatoform disorder”, by Systemic Exercise Intolerance Disease (SEID) (Institute of Medicine, 2015), a “more ‘biological’ disease”, implicates “a need to debate the failure of the bio-psycho-social model to ‘mainstream’ and destigmatize psychiatry”.
    Comet, JaimeS, Bob and 3 others like this.
  2. mango

    mango Senior Member

    Bob likes this.
  3. A.B.

    A.B. Senior Member

    The BPS model of CFS is the source of stigma.

    The ideas surrounding it are essentially hateful prejudice rephrased to sound more sciencey and less offensive.

    Deconditioned = lazy
    False illness beliefs = hysterical
    Boom and bust behaviour = patients can't manage their own lives, need a therapist
    Fear avoidance behaviour = patients let their fears control them
    Comet, JaimeS, ballard and 6 others like this.
  4. JaimeS

    JaimeS Senior Member

    Silicon Valley, CA
    Fear avoidance behavior = patients are terrified of motion

    Translation: people with really poor scores in biology saw that heart rate jumped when patients with ME, many of whom also have OI, stand, and drew the most logical conclusion possible:

    Patients are clearly terrified of standing up.

    I would say this is total and complete nonsense but it's what my first GP said when I told him that my heart pounded terribly when I first stood up in the morning: that I must be anxious about starting my day. :confused:
    MEMum, Comet, Bob and 4 others like this.

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